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(17 May 2024) My platelet count was 171

drbean7218
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10 years 1 month ago #42935 by drbean7218

Replied by drbean7218 on topic (2 Aug 2014) Platelet count is 235

The latest platelet count as at 2 Aug 2014 - 235, hematin raised to 12g/dl

The latest medical treatment is
a. Cyclosporine A - 100 mg daily
b. Promacta - 25 mg daily

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drbean7218
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9 years 11 months ago #43845 by drbean7218

Replied by drbean7218 on topic Is that the signal of low platelet count

The latest platelet count as at 13 Sep 2014 - 183, it dropped more than 50, but my doctor still satisfy with the result, since it still in normal range.

Another news is the hematin back to normal

The treatment remain unchanged
a. Cyclosporine A - 100 mg daily
b. Promacta - 25 mg daily

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DeeDee Marie
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9 years 11 months ago #43852 by DeeDee Marie

Replied by DeeDee Marie on topic (13 Sep 2014) Platelet count is 183

Hi Dr. Bean,

Sorry I didn't reply to your last post but I've been having a lot of trouble with my shoulder after falling on it (and, that was after recovering from surgery).

It seems you are still doing very well which I am very happy for you! And, with your hematin back to normal, this is really good news! Hope you are feeling well, too.

It seem the Cyclosporine A is working very well along with the Promacta.

Take care and keep us posted!

Dee Dee

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drbean7218
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9 years 11 months ago - 9 years 11 months ago #43854 by drbean7218

Replied by drbean7218 on topic (13 Sep 2014) Platelet count is 183

DeeDee Marie wrote: Hi Dr. Bean,

Sorry I didn't reply to your last post but I've been having a lot of trouble with my shoulder after falling on it (and, that was after recovering from surgery).

It seems you are still doing very well which I am very happy for you! And, with your hematin back to normal, this is really good news! Hope you are feeling well, too.

It seem the Cyclosporine A is working very well along with the Promacta.

Take care and keep us posted!

Dee Dee

I am sorry to hear that. Hope you will get well soon.

My platelet count dropped more than 50 this time, that's why I am afraid of a crash in upcoming weeks.

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DeeDee Marie
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9 years 11 months ago #43865 by DeeDee Marie

Replied by DeeDee Marie on topic (13 Sep 2014) Platelet count is 183

Dr. Bean,

Try not to stress out too much, and hopefully you won't crash. I know that it is hard to tell sometime. I just seem to crash, too. Mind just happens like within one day. But, so far, I've been holding good.

Take care and we will wish for the best!

Dee Dee

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drbean7218
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9 years 10 months ago #44746 by drbean7218

Replied by drbean7218 on topic (25 Oct 2014) Platelet count is 253

The latest platelet count as at 25 Oct 2014 - 253

My doctor reduce the dose of Cyclosporine A slightly;
a. Cyclosporine A - 75 mg daily
b. Promacta - 25 mg daily

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DeeDee Marie
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9 years 10 months ago #44789 by DeeDee Marie

Replied by DeeDee Marie on topic (25 Oct 2014) My platelet count is 253

Dr. Bean,

Your platelets are holding up very well! Glad to see that you are doing good and your doctor has your platelets under control! And, thanks for the update.

Good luck to you,

Dee Dee

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drbean7218
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9 years 9 months ago #45295 by drbean7218

Replied by drbean7218 on topic (29 Nov 2014) My platelet count is 263

The latest platelet count as at 29 Nov 2014 - 263

My doctor reduce the dose of Cyclosporine A slightly;
a. Cyclosporine A - 50 mg daily
b. Promacta - 25 mg daily

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DeeDee Marie
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9 years 9 months ago #45363 by DeeDee Marie

Replied by DeeDee Marie on topic (29 Nov 2014) My platelet count is 263

Hi Dr. Bean,

I'm so glad that you are doing good. I've been out of town for a few days and didn't get a chance to respond to your post.

Hope you are feeling good, too. Thanks for giving us the update. It's nice to see what's working for you. You are your doctor are doing something right!

Dee Dee

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drbean7218
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9 years 8 months ago #45693 by drbean7218

Replied by drbean7218 on topic (3 Jan 2015) My platelet count is 130

The latest platelet count as at 3 Jan 2015 - 130

It dropped 50% this time, I am afraid of crashing again

My doctor unchanged the dose of medicine
a. Cyclosporine A - 50 mg daily
b. Promacta - 25 mg daily

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DeeDee Marie
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9 years 8 months ago #45741 by DeeDee Marie

Replied by DeeDee Marie on topic (3 Jan 2015) My platelet count is 130

Hi Dr. Bean,

Has anything changed since your last blood draw? And, when you do crash, how far do your platelets go down? If they don't go below 10 and your symptom are not too bad, I would try not to worry too much. Something might have recently stressed you out. So far, you have been doing really good. And, at the present, your platelets are still fine.

Please do keep us posted. And, good luck on keeping those platelets up!

Dee Dee

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drbean7218
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9 years 8 months ago #45745 by drbean7218

Replied by drbean7218 on topic (3 Jan 2015) My platelet count is 130

DeeDee Marie wrote: Hi Dr. Bean,

Has anything changed since your last blood draw? And, when you do crash, how far do your platelets go down? If they don't go below 10 and your symptom are not too bad, I would try not to worry too much. Something might have recently stressed you out. So far, you have been doing really good. And, at the present, your platelets are still fine.

Please do keep us posted. And, good luck on keeping those platelets up!

Dee Dee

I've got a big flu in the mid of Dec 2014, it took a long time to recover.

If it is going to crash, my platelet count will drop to 3/4 in one or two weeks and I will see some red spots on the skin.

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DeeDee Marie
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9 years 8 months ago #45749 by DeeDee Marie

Replied by DeeDee Marie on topic (3 Jan 2015) My platelet count is 130

Dr. Bean,

You've made it this far without them crashing--so this is a good sign. You mean your platelets go to 3 or 4? There's a good chance that they just dropped from being sick. Make sure you get rest until they are back up.

Good luck to you and hope you are feeling better.

Dee Dee

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drbean7218
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9 years 6 months ago #46416 by drbean7218

Replied by drbean7218 on topic (14 Feb 2015) My platelet count is 234

My platelet count as at 14 Feb 2015 - 234

My doctor reduced the dose of cyc-a and we reach the minimum level again

a. Cyclosporine A - 25 mg daily
b. Promacta - 25 mg daily

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gstuts
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9 years 6 months ago #46611 by gstuts

Replied by gstuts on topic (14 Feb 2015) My platelet count is 234

Hi, I am new, when I first found out about my low platelet counts I didn't know anything about it. My head,neck and spine Dr kept bugging me about it. They were only in the low 60's so I went to a blood specialist, he said, LOL, you have no tumors, don't take naproxen, live long and prosper. I happen to see a nurse practitioner, she discovered help c. Lucky for me, not. So I go through all of that chemotherapy and get cured, I am left with the baby so to speak, ITP, recently my platelets dropped to 30, now they are back to my normal, 100 to 120. I know little about ITP at my normal level do I need meds?

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

9 years 6 months ago #46613 by Sandi

Replied by Sandi on topic (14 Feb 2015) My platelet count is 234

Most people do not treat unless counts are under 20k or 30k, depending on symptoms. Most only treat when they have to; all of the meds have side effects.

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Olvera806
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9 years 6 months ago - 9 years 6 months ago #46635 by Olvera806

Replied by Olvera806 on topic (14 Feb 2015) My platelet count is 234

Is there anyone here who has been dealing with I.T.P. for more than 23 years? or any success stories of bone marrow transplants? Sorry if I'm dropping in on the wrong thread for this. The tittle seemed nice since I havnt seen that count in a while. Haha

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

9 years 6 months ago - 9 years 6 months ago #46644 by Sandi

Replied by Sandi on topic (14 Feb 2015) My platelet count is 234

There have been a few people here who have dealt with ITP for many years. What have you tried and how are your counts? I have never seen a bone marrow transplant done for ITP; the risks may be worse than the benefit. It's a very drastic measure.

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Olvera806
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9 years 6 months ago - 9 years 6 months ago #46650 by Olvera806

Replied by Olvera806 on topic (14 Feb 2015) My platelet count is 234

I was first diagnosed when I was 5 months old and I turn 24 in October. I have had a (not in any order) splenectomy, ivig, prednisone, ciclosporin, cellcept, Atg, n-plate, chemo, and currently I am getting rituximab every Friday for 4 weeks (the 27th will be my second dosage). My last count was 7

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DeeDee Marie
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9 years 6 months ago #46662 by DeeDee Marie

Replied by DeeDee Marie on topic (14 Feb 2015) My platelet count is 234

Dr. Bean,

You are still doing great!! It seems your treatment plan works really well for you! I wish you continue success with your platelets.

Dee Dee

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DeeDee Marie
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9 years 6 months ago #46663 by DeeDee Marie

Replied by DeeDee Marie on topic (14 Feb 2015) My platelet count is 234

I wouldn't treat at the 20-30 levels. It seems you are doing fine right now--unless you are getting a lot of bruising or bleeding symptoms. Good luck to you.

Dee Dee

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

9 years 6 months ago #46664 by Sandi

Replied by Sandi on topic (14 Feb 2015) My platelet count is 234

Olvera:

Did N-Plate not work for you?

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DeeDee Marie
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9 years 6 months ago #46665 by DeeDee Marie

Replied by DeeDee Marie on topic (14 Feb 2015) My platelet count is 234

Olvera,
I agree with Sandy. A bone marrow transplant seems like a very drastic measure. Do you have a lot of symptoms? Also, what are your counts at normally?

Dee Dee

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Olvera806
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9 years 6 months ago - 9 years 6 months ago #46673 by Olvera806

Replied by Olvera806 on topic (14 Feb 2015) My platelet count is 234

Sandi:
No unfortunately it did not work for me. My count went up to 80 then they gradually when down to like 10. It has been quite a while since they tried the n-plate so I don't remember too much details.

Dee Dee:
Just the bruising, petechiae, bleeding gums and feeling tired. I'm just tired of the side effects of the pills and other medications (high blood pressure, weight gain, stomach acid problems, head aches, etc.). It's been extremely frustrating. My counts usually sit under 20,000

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DeeDee Marie
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9 years 6 months ago #46677 by DeeDee Marie

Replied by DeeDee Marie on topic (14 Feb 2015) My platelet count is 234

Olvera,
I don't blame you. You've been through a lot of treatments for someone so young. I hate all the meds! If I had it my way, I wouldn't take any. Good luck to you. I have known a few who stopped taking any meds with their platelets around 10-12.

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

9 years 6 months ago #46682 by Sandi

Replied by Sandi on topic (14 Feb 2015) My platelet count is 234

Olvera:

How long did you try N-Plate?

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Olvera806
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9 years 6 months ago #46692 by Olvera806

Replied by Olvera806 on topic (14 Feb 2015) My platelet count is 234

The N-plate was before 2010 and from what I remember they would gradually increase the dosage over a course of a month or two.

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Sandi
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Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18

9 years 6 months ago #46693 by Sandi

Replied by Sandi on topic (14 Feb 2015) My platelet count is 234

Maybe it would be worth trying again for a longer time period? It doesn't always work quickly for some people.

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drbean7218
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9 years 5 months ago #47389 by drbean7218

Replied by drbean7218 on topic (14 Feb 2015) My platelet count is 234

DeeDee Marie wrote: Dr. Bean,

You are still doing great!! It seems your treatment plan works really well for you! I wish you continue success with your platelets.

Dee Dee

Dee Dee, thanks.

If my platelet count still looking good in upcoming medical check up in the mid of April, my doctor may decide to stop Cyclosporine A, but I will discuss with him about the possibility of reducing the dose of promacta.

It was because we did the same thing last year, but my platelet count crashed after 1.5 months, that's my concern to stop Cyclosporine A.

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DeeDee Marie
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9 years 5 months ago #47543 by DeeDee Marie

Replied by DeeDee Marie on topic (14 Feb 2015) My platelet count is 234

Hi Dr. Bean,

You are doing very well! It might not be a good idea to stop the Cyclosporine A and reduce
the promacta at the same time. Is this what you did before? Maybe try one at a time and see how you respond. Good luck to you! And, hopefully you will not crash this time.

Dee Dee

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