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Sandi wrote: All
I have seen a handful of people developing MDS after being diagnosed with ITP. I would say that is the most common after-ITP diagnosis other than autoimmune disorders.
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patti wrote:
Sandi wrote: All
I have seen a handful of people developing MDS after being diagnosed with ITP. I would say that is the most common after-ITP diagnosis other than autoimmune disorders.
I have read this. I'm curious if anyone's doctor noted for them that some of the treatments for ITP (rituxan, vincristine) can cause treatment induced MDS? I know for my mom, they did not tell her at all that MDS was very much a potential issue after her cancer treatment.
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Just curious - do you think ITP developed into MDS or was ITP a symptom of these people's MDS?Sandi wrote: I have seen a handful of people developing MDS after being diagnosed with ITP. I would say that is the most common after-ITP diagnosis other than autoimmune disorders.
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alt8383 wrote: My father was diagnoised with ITP 6 years back with his home base level at 35. This year he was rediagnoised with MDS stage 1 after his second BMBx. He is 77 and was given 2 years to live.
January this year my daughter was diagnoised with ITP and nothing so far has worked for her(prednisone allergy, IVIg lasted 1.5 weeks, tomorrow is WinRho, and if that does not work next week is spleenectomy) I am concerned she will develope MDS. her Hemotologist said MDS is a old mans disease, it is not likely that woman get it young or old.
Do you know of any woman having MDS and did they have ITP first?
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