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What to do?
- sandy
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I only go see the dr. every six months, the last time I saw her she said if my platelets fell below forty she would start me on an IV treatment. I went friday 5-28-10 count was thirty. I'm confused. Now she says I need my spleen out I go back on June 16th, I'm 41 years old. I've done well so far. except for fatigue and pain. I am starting to think it's all in my head. Wht to do, Do I change doctors?
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- CindyL
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- Sandi
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- Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I wouldn't get my spleen out before trying any treatments.
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- NatalieM
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Natalie
*Here's to high platelets!*
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- hairball01
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- sandy
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- sandy
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- server
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- newcreationchangingdaily
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What part doesn't your family understand? How could they not understand?! I'm sorry you have to deal with that on top of ITP. In the end though, it's gonna be alright! Please feel free to share anything you want here, we all understand.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen
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- sandy
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- Sandi
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- Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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I developed Lupus 8 years after my ITP diagnosis. My blood work was fine at first too. I'm not saying you have it, just something that should probably be ruled out again at this point.
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- sandy
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- Sorenna1
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I also have fatige and pain that waxes and wanes.
I ahve also read that a large percentage of those with ITP will go on to develop an autoimmune disorder within ten years of IPT dx.
Some see it as a possible harbinger, others as the autoimmune disease in itself.
It really takes a lot or personal decision making with a dr that will let you make your own decisions.
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