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Rheumatoid Arthritis 1 month 3 weeks ago #72542

  • RR01
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Does anyone have neck and shoulder pain along with joint pain in your fingers and knee. I am thinking maybe I got RA :(. Does anyone have arthritis along with ITP? Since ITP is auto immune wondering if RA is an easy possibility as well?

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Rheumatoid Arthritis 1 month 3 weeks ago #72543

  • ImPatient
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I've only got joint pain everywhere since I used Eltrombopag, so for me I think it's probably a side effect that persists and can be fixed someday. Eating salmon and tuna helped a lot, I actually stopped being vegan after 17 years, because it improved my pain and my platelet level.
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Rheumatoid Arthritis 1 month 3 weeks ago #72546

  • MelA
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RR01 have you talked with your hematologist or PCP about this?  There are tests to determine if one has RA.  Why not talk with your doctor and get the tests done?   I have arthritis, not rheumatoid arthritis.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Rheumatoid Arthritis 1 month 2 weeks ago #72565

  • RR01
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Does anyone take Tylenol daily with ITP. Does it affect platelet count? 

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Rheumatoid Arthritis 1 month 1 week ago #72570

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Assuming Tyenol is Paracetamol, I took it regularly when I broke my wrists. No affect on my platelet count.
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Rheumatoid Arthritis 1 month 1 week ago #72572

  • MelA
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RR01  how much Tylenol are you taking daily?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Rheumatoid Arthritis 1 month 1 week ago #72575

  • RR01
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Haven't started yet, I thought that taking pain meds would lower the platelet count. So holding up on that. Hence wanted to hear from you all about any experience with regular pain meds. My platelet count is really really low 

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Rheumatoid Arthritis 1 month 1 week ago #72576

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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My count is generally in single figures. Paracetamol has had no affect on it 
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Rheumatoid Arthritis 1 month 1 week ago #72577

  • MelA
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Tylenol is what I was told only to take (Tylenol and Paracetamol are the same) - just Tylenol.   It has not dropped my count to my knowledge.  Just need to make sure you don't take more than allowed in a 24 hour period!!

Why not talk with your hematologist about this?

(What I found interesting is when I had total knee replacement I had to take baby aspirin for a few weeks to ward off blood clots, well my count actually went up :) and we aren't supposed to take aspirin)
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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