TOPIC:

What can I take for cough and colds? Anyone know if migraine meds are safe? Thanks much.

MarLinTX if you have a hematologist why not ask those questions of him/her?
I do run things by my hematologist - ex:  when I had total knee replacements 9 months apart I checked with him first about the daily baby aspirin I'd have to take to keep away blood clots.  
What is your count?  What treatment, if any, are you using?
 
I know you are scared - but let me tell you about my experience.  I was diagnosed in 1989 a couple months before we were to move to Tokyo through my husband's job - I was given the opportunity to cancel the move but I felt this was an opportunity of a lifetime and didn't want to give it up for my husband's sake and also our sons.    We moved while I was on 60mg of prednisone and not knowing if I would have a hematologist or what.  Turns out I had a super hematologist in the Japanese system AND he knew my hematologist here.   I am so thankful we moved and had the fantastic experience we did - also moving from Tokyo to Hong Kong and traveled to different countries and I didnt' even check my count first.  I did stay on prednisone, but lower dose, while overseas and got off it when we moved back.  We were there almost 4 years - since back we have traveled overseas and within the States - I've given up only skiing because I like my bones the way God made them.  

I was given the opportunity to have my spleen removed but since they could not assure me I'd be cured I have kept my spleen. 

This is all very new to you and I do sympathize - we are here for moral support and to share our experiences with you.  I may be one of the lucky ones as I've had ITP for almost 33 years now and have had some setbacks but nothing too bad.  My count isn't in the normal range and really the hematologist doesn't want it there - it did go up however while on the baby aspirin which was a surprise.

Take care now - keep us posted and don't give up!

Thanks, Mel. Sounds as if you’ve got it figured out. If I make it 33 years with this I’ll be pushing 100! To answer your question simply: I didn’t want to call my hematologist over the weekend. J used the messaging app and also did a BCBS virtual doc visit with a GP. I thought those of you dealing with this disorder could offer simple advice such as ‘’Robitissin good” or   ‘Tessalon bad.” I heard from my doc’s nurse. I had just hoped those of you with the disorder would be helpful with real world perspectives and applications.
You moved to Japan and I just gave away a 10 day trip (to my oldest) because I’m so early in the treatment protocol.  Maybe I’ll feel more comfortable , and less scared (although being an RN myself and knowing how bad it can be) dealing with this disorder after I’ve had it a while and get more stable. Appreciate your time. 
PS: My middle child did a summer language study in Nagoya when he was 16. He loved Japan. He got envious  though when my daughter and I spent the same summer in Honolulu so she could be in their summer scholar program at UH and surf most afternoons.  Kids ❤️~. Thanks again. 

Hey, you never know - there was a lady on the news tonight who was celebrating her 103rd birthday  
 
I, myself, don't like to tell anyone what they can take because we all react to things differently - what won't bother my count may cause a problem for someone else.   I do take tylenol only except in the case of not wanting to get a blood clot after surgery.  I haven't taken anything for a cough in ages.   

Figured ITP out?  Never - the only thing sure about ITP is there is nothing sure about ITP!

Hope your count isn't too low (I looked like I'd been beaten in a back alley with a 2x4 when diagnosed) and that there will be many good trips in your future!