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ITP from AstraZeneca

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2 years 9 months ago - 2 years 9 months ago #72147 by michaelp
ITP from AstraZeneca was created by michaelp
Hello, i’m new here, I got diagnosed with ITP from AstraZeneca almost 5 months ago and currently about to start promacta tomorrow. I’ve been under dexamethasone, 2 IVIG’s and prednisolone but don’t seem to work, I’ve had COVID a few weeks with very minimal symptoms (thank god) and my platelets went UP to around 120k from having the virus, but a few weeks up until now im back down to the 10-30 range. I just wanted to know a few things and get opinions.

Is vaccine induced ITP temporary or chronic/permanent?

How good is promacta compared to everything else I’ve tried?

Should I be worried about side effects/damage from promacta?

Would the AstraZeneca antibodies still be in my system causing the platelets decreasing?

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2 years 9 months ago #72174 by HeidiSt
Replied by HeidiSt on topic ITP from AstraZeneca
Sounds like you are really having a rough time! Hang in there. I don't have the answers for your questions, but I feel for you.  The numbers can be scary, but many people recover, or are able to live a comfortable life.  there are alot of good resources on here. Hang in there. 

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1 year 1 week ago #73388 by Daryl
Replied by Daryl on topic ITP from AstraZeneca
Not sure you'll see this since it's an old post, but I'm in the same boat, ITP after vaccination. For me it has now been over a year. I had the same question of whether vax-induced ITP might be shorter-lived, but unfortunately I'm still cytopenic. Currently my count is pretty good because I had dexemethasone a few months ago, but apparently this boost is usually temporary. 

In my research I did come across this study that found antibodies were persistent as far as six months. What's annoying about these studies is they always have a set duration, so longer term follow-up is usually not available.

Promacta has some concerning side effects but it has been around a while and many people seem to have success with it. You could also look at Doptelet, which is a similar drug but milder side effects.

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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