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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Doptelet
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Doptelet 8 months 1 week ago #72103

  • GaryG1
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Anyone been on Doptelet longer then 3-6 months?

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Doptelet 8 months 1 week ago #72104

  • sacapli
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I have not ever been on Doptelet, but I would like to know how this goes for you :-)

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Doptelet 5 months 3 weeks ago #72294

  • MariLinTx
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  • Ret. RN/attorney, wife/mom/grandma diagnosed 2/1/22 with ITP. Fear has worn off as Doptelet is working; now I’m told I need Plavix b/c of a significantly blocked artery. I am so scared having ITP, CAD, uncontrollable BP, renal disease & mobility issues.
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I’m on it one month now. I’m also curious as to an answer. I’m having great results! Count went up to 283 after two weeks on it that doc dropped it to three times a week! Labs Friday will tell how that dosage is doing. 

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Doptelet 5 months 3 weeks ago #72296

  • GaryG1
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Hi MariLinTx,
Im so glad to see that the Doptelet pills are increasing your platelet counts. I have had ITP for over 40 years. I recently switched from my N Plate Treatment to try the Doptelet pills. I was on them for three months and was still having weekly counts in the 40-60 range. I started with the initial dosage and increased up to the next level of dosing with no improvement.
I have decided to switch back to N Plate injects now that they were at least able to increase my counts before up around the 100 level. I am also on Plavix and Eliquis and Beta Blockers so my Hemo would like to see my counts above 100 even though I don’t have any bleeding or bruising issues in the 5o range, Guess I’ll be driving 45 minutes very week to get the injection again.

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Doptelet 5 months 3 weeks ago #72297

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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GaryG1

Is it not possible for you to self inject your Nplate?

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Doptelet 5 months 3 weeks ago #72298

  • ecoclayton
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  • Diagnosed with ITP 5/23/19
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I've been on Doptelet for 2 years (3/2020).  Started at 20mg/day and it kept my platelets between 55 - 75 until I took the 2nd Moderna vaccine (4/2021) when it dropped my platelets into low 20's.  My numbers were jumping up and down (20's - 50's) so in January 2022 I upped the dose. I am now taking 40 mg/day M,W,F and 20mg T,TH,S,S and platelets have been 60-70 since. I don't really have any issue unless I am in the mid to low 20's. (mainly bruising and tired in the afternoons). I am having some liver issues when I drink even minor amounts of alcohol. I don't know if that is from Doptelet or not, but I never had that problem before.

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Doptelet 3 months 5 days ago #72453

  • janisshort1
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I have been on it for 3 months. My numbers have been as low as 25 and high as 179. I’ll take it because prior to Doptelet they were in single digits. Once they stabilize they’ll take me off it. I was put on Cellcept at the same time. I will probably stay on Cellcept though 

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Doptelet 3 months 16 hours ago #72458

  • Toby-Wan-Kenoby
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  • Posts: 39
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Inhaber switched to it a month ago. Did not do much for me. But almost nothing does. My base levels 2. NPlate and Cortision works best and we are trying that again. 
Diagnosed 7/2019 let the fun begin...

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Adults With ITP
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Doptelet

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