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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
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Newly diagnosed. 1 year 2 months ago #72094

  • rmunns
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I was diagnosed 1 week ago. I woke up with blood in my bed and huge blood blisters in my mouth. Went to hospital and my platelets were less than 1. Spend a few days in the hospital doing steroid treatment. Went home platelets 90,000. Three days later Woke up with blood on my pillow, mouth blisters. Went to ER. Platelets less than 1. Did transfusion, ivig, steroids. Platelets up to 38,000. They think they will discharge me today. Prior authorization request sent for Promacta.  Any thoughts on knowing your platelets have dropped prior to bleeding? Other thoughts on how I take care of myself at home. Things to do and don’t do

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Newly diagnosed. 1 year 2 months ago #72097

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Have a look at this 
pdsa.org/patients-caregivers/disease-information.htm

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Newly diagnosed. 1 year 2 months ago #72098

  • rmunns
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Thank you. This is not my first immune disorder. I am trying to get my hands on all the information I can. Knowledge is very help to me. 

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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Newly diagnosed.

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