I was diagnosed 1 week ago. I woke up with blood in my bed and huge blood blisters in my mouth. Went to hospital and my platelets were less than 1. Spend a few days in the hospital doing steroid treatment. Went home platelets 90,000. Three days later Woke up with blood on my pillow, mouth blisters. Went to ER. Platelets less than 1. Did transfusion, ivig, steroids. Platelets up to 38,000. They think they will discharge me today. Prior authorization request sent for Promacta. Any thoughts on knowing your platelets have dropped prior to bleeding? Other thoughts on how I take care of myself at home. Things to do and don’t do
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
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