Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Newly diagnosed. 8 months 1 week ago #72094

  • rmunns
  • Offline
  • Posts: 3
  • Thank you received: 1
I was diagnosed 1 week ago. I woke up with blood in my bed and huge blood blisters in my mouth. Went to hospital and my platelets were less than 1. Spend a few days in the hospital doing steroid treatment. Went home platelets 90,000. Three days later Woke up with blood on my pillow, mouth blisters. Went to ER. Platelets less than 1. Did transfusion, ivig, steroids. Platelets up to 38,000. They think they will discharge me today. Prior authorization request sent for Promacta.  Any thoughts on knowing your platelets have dropped prior to bleeding? Other thoughts on how I take care of myself at home. Things to do and don’t do

Please Log in or Create an account to join the conversation.

Newly diagnosed. 8 months 1 week ago #72097

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2021
  • Karma: 7
  • Thank you received: 575

Please Log in or Create an account to join the conversation.

Newly diagnosed. 8 months 1 week ago #72098

  • rmunns
  • Offline
  • Posts: 3
  • Thank you received: 1
Thank you. This is not my first immune disorder. I am trying to get my hands on all the information I can. Knowledge is very help to me. 

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo