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Self administered romiplostim 7 months 6 days ago #71850

  • Juliandrea85
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Well...i am excited i started to learn how to self administer romiplostim. I'm being trained by the nurses and waiting to be approbed to bring romi home and inject myself. It will give me a little more time avoiding the weekly visit to the hospital. It's very simple but I'm proud :)

Anyone here self administer romi?

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Self administered romiplostim 7 months 5 days ago #71851

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Over here in UK most patients self administer as far as I know. Remember to keep vials in the fridge. 

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Self administered romiplostim 7 months 5 days ago #71852

  • Juliandrea85
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:) i live in Spain! Today the nurse told me vials have an expiration date of one week so I think I must go to the hospital every two weeks ...I thought it could be more, for example every 4 weeks. Anyway, a little more flexibility in my life is a good thing.

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Self administered romiplostim 7 months 4 days ago #71855

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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  • Karma: 7
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It sounds like you are being given a reconstituted dose. Ask for the single dose  'self injection kit' packs. They come with everything one needs to administer a single dose. That is what we get in the uk. My hospital dispenses 6-8 packs at a time. The vials need keeping in the fridge so can be taken out of  the packs and put in a tupperware  if you don't have sufficient space for  the entire pack. Here is the link to European  patient information leaflet  www.medicines.org.uk/emc/files/pil.567.pdf  . It starts with the many possible side effects but if you go through to page 7 onwards you will see what is included in the kit. 

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Self administered romiplostim 7 months 1 day ago #71872

  • Juliandrea85
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Thank you!!
This is a valuable information but I think my hospital doesn't have that option. Maybe in the future. Well, it's a little bit better to avoid to go to the hospital some weeks.

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Self administered romiplostim 6 months 3 weeks ago #71880

  • JJ
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When I was on the romiplostim trial ten or so years ago, we didn't have the special packs so were given the vials and the water separately and drew up the water and injected it into the vial to mix it ourselves. Maybe they will let you do that. 

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