Well...i am excited i started to learn how to self administer romiplostim. I'm being trained by the nurses and waiting to be approbed to bring romi home and inject myself. It will give me a little more time avoiding the weekly visit to the hospital. It's very simple but I'm proud
i live in Spain! Today the nurse told me vials have an expiration date of one week so I think I must go to the hospital every two weeks ...I thought it could be more, for example every 4 weeks. Anyway, a little more flexibility in my life is a good thing.
ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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It sounds like you are being given a reconstituted dose. Ask for the single dose 'self injection kit' packs. They come with everything one needs to administer a single dose. That is what we get in the uk. My hospital dispenses 6-8 packs at a time. The vials need keeping in the fridge so can be taken out of the packs and put in a tupperware if you don't have sufficient space for the entire pack. Here is the link to European patient information leaflet www.medicines.org.uk/emc/files/pil.567.pdf
. It starts with the many possible side effects but if you go through to page 7 onwards you will see what is included in the kit.
When I was on the romiplostim trial ten or so years ago, we didn't have the special packs so were given the vials and the water separately and drew up the water and injected it into the vial to mix it ourselves. Maybe they will let you do that.
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