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What to expect with Rituximab

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2 years 8 months ago #71684 by LISAKUSZMAR
What to expect with Rituximab was created by LISAKUSZMAR
I am newly diagnosed (June 2nd) and start Rituximab on Thursday of this week. I will do it 1x per week for 4 weeks. I am wondering if anyone can provide insight into side effects and if you feel bad for like one day after or a few days? I am worried about work and if it is going to impact my ability to go to work and perform. Thank you in advance for any insight.

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2 years 8 months ago #71685 by CindyL
Replied by CindyL on topic What to expect with Rituximab
Hi, Lisa. One thing to remember is that everyone is different. What works for one may not work for another.
My counts started going up with the first dose, but for others it took longer or didn't work at all. I was told to have someone with me for the first treatment, but I had no issues and my husband took the day off for nothing. I had no problems with the rest of my treatments either. I was actually surprised I got the 4th dose as my counts were in the normal range after the 3rd.
Good luck with your treatment.
The following user(s) said Thank You: LISAKUSZMAR

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  • midwest6708
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  • ~ Janet ~ Diagnosed Sept. 2008
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2 years 8 months ago #71686 by midwest6708
Replied by midwest6708 on topic What to expect with Rituximab
I had a lot of allergic reactions during the first infusion that were addressed as they appeared, but that slowed the process down to an all-day affair. I had a low-grade fever that night, but otherwise could function fine the next day.
Most people I've read about here had no cumbersome side effects.
Good luck with it.

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2 years 8 months ago #71687 by JJ
Replied by JJ on topic What to expect with Rituximab
It's common to have a reaction the first time, I had hives, but that's while it's being given and not afterwards. I've just had my 13th infusion, for lymphoma and not ITP but it's all the same, and it's now done very quickly and I get no after effects or side effects at all. One thing to remember is that it is very good at what it does.. killing off the white B cells which are the cells that make antibodies, so vaccines won't work and you might not be able to fight covid so don't catch it!

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2 years 8 months ago #71689 by milayyann
Replied by milayyann on topic What to expect with Rituximab
Hello. I got a first dose rituximab on Tuesday (27th of July). Also I got pre medical help before rituximab (prednisolone, suprastin, diclofenac). On the next day my blood pressure was high a little bit. But I felt myself ok.
Now I wait the second dose on the next Tuesday. I think all will be good))

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2 years 8 months ago #71690 by MelA
Replied by MelA on topic What to expect with Rituximab
Lisakuszmar - I have not had rituxan but I recall a very smart man a number of years ago, if memory serves me right his name was Gary, and he said to be well hydrated. Hope all goes well for you!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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