Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1
  • 2

TOPIC:

It would appear I have lost my response to Eltrombopag 2 months 2 days ago #71714

  • momto3boys
  • Offline
  • Posts: 508
  • Karma: 2
  • Thank you received: 139
48 is definitely about the same thing as 50. Hopefully they won't hold you to an arbitrary fencepost if you are doing generally well otherwise. I would also be fighting to not increase the dose in the hopes of achieving some stability. Keep us posted and hang in there!
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 2 weeks ago #71760

  • mrsb04
  • Away
  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
  • Posts: 1886
  • Karma: 7
  • Thank you received: 540
Count holding at 49. Still on 325mcg of Romi. Promoted to monthly bloods

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 2 weeks ago #71763

  • CindyL
  • Away
  • Posts: 1404
  • Karma: 1
  • Thank you received: 181
That is good news, mrsb.
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 2 weeks ago #71764

  • MelA
  • Offline
  • Posts: 875
  • Karma: 2
  • Thank you received: 282
That is super mrsb!!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 2 weeks ago #71772

  • momto3boys
  • Offline
  • Posts: 508
  • Karma: 2
  • Thank you received: 139
Sounds great. Hopefully you will continue with counts in that range!
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 2 weeks ago #71775

  • mrsb04
  • Away
  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
  • Posts: 1886
  • Karma: 7
  • Thank you received: 540
I sure hope so Mom I don't want to have to increase my dose.

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 2 weeks ago #71783

  • poseymint
  • Offline
  • Posts: 623
  • Karma: 1
  • Thank you received: 188
Mrs B~ You are in the perfect sweet spot right around 50. Hope it holds steady! :) I get weekly labs and somehow mine got lost this week- arg. I think my counts were low so maybe just as well to not know- I don't want to raise my dose either.
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 1 month 1 day ago #71802

  • scs2521
  • Offline
  • Posts: 7
  • Thank you received: 1
Hi, so sorry about the lost response. Same thing happened to my daughter 4 years ago. Fortunately Nplate became available as self-administered and that has been working for her ever since (fingers crossed).
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 3 weeks 4 days ago #71808

  • mrsb04
  • Away
  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
  • Posts: 1886
  • Karma: 7
  • Thank you received: 540
Last 2 counts  49 then 50, nice and stable. Haemo has given me a document to read regarding the PRN1008 trial. 

Please Log in or Create an account to join the conversation.

It would appear I have lost my response to Eltrombopag 3 weeks 4 days ago #71811

  • CindyL
  • Away
  • Posts: 1404
  • Karma: 1
  • Thank you received: 181
Happy to hear your counts are stable where you want them, mrsb!
The following user(s) said Thank You: mrsb04

Please Log in or Create an account to join the conversation.

  • Page:
  • 1
  • 2

Charity NavigatorGuideStar Seal NORD Member Badge 2021THSNA logo