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It would appear I have lost my response to Eltrombopag 2 years 6 months ago #71714

  • momto3boys
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48 is definitely about the same thing as 50. Hopefully they won't hold you to an arbitrary fencepost if you are doing generally well otherwise. I would also be fighting to not increase the dose in the hopes of achieving some stability. Keep us posted and hang in there!
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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71760

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Count holding at 49. Still on 325mcg of Romi. Promoted to monthly bloods

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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71763

  • CindyL
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That is good news, mrsb.
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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71764

  • MelA
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That is super mrsb!!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71772

  • momto3boys
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Sounds great. Hopefully you will continue with counts in that range!
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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71775

  • mrsb04
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I sure hope so Mom I don't want to have to increase my dose.

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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71783

  • poseymint
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Mrs B~ You are in the perfect sweet spot right around 50. Hope it holds steady! :) I get weekly labs and somehow mine got lost this week- arg. I think my counts were low so maybe just as well to not know- I don't want to raise my dose either.
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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71802

  • scs2521
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Hi, so sorry about the lost response. Same thing happened to my daughter 4 years ago. Fortunately Nplate became available as self-administered and that has been working for her ever since (fingers crossed).
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It would appear I have lost my response to Eltrombopag 2 years 5 months ago #71808

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Last 2 counts  49 then 50, nice and stable. Haemo has given me a document to read regarding the PRN1008 trial. 

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It would appear I have lost my response to Eltrombopag 2 years 4 months ago #71811

  • CindyL
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Happy to hear your counts are stable where you want them, mrsb!
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