I was diagnosed with ITP in May of 2020. After fighting to convince my gynocologist that I was having an abnormally long and heavy period we entered the global pandemic and I was getting no where fast on getting any kind of blood work done in person. After nearly passing out while picking strawberries, I went to an urgent care where they discovered my hemaglobin levels were 5.7LL with undetectable platelets. I was told I needed to head to an emergency room. Upon checking in they ran a CBC and told me that while my hemaglobin was low, I was not bleeding enough to be worried. The gynecologist tried to convince me to opt out of checking into the hospital, and if it was not for a very nice we nerse I would have walked out without realizing my platelets were 2LL. Once they checked me in to a hospital bed they called in a Hematologist. I was in the hospital for 6 days. I got three blood transfusions, and one platelet infusion, which I had an allergic reaction to, before the steroids kicked in. I was able to beg my way out of the hospital with a platelet count of 38L and a large prescription of Prednisone. I was on Prednisone for about a month before they tappered off. I had horrible side effects, lost a bunch of hair, had huge mood swings, and insomnia. My platelets held for two months above 150L before they dropped below 100L and I was put back on Prednisone at an extremely low dose. I still did not tolerate it very well with major insomnia. I as a healthy 28 year old just beginning my career, this disease has thrown me for a loop. I have had no symptoms since my hospital visit, but the treatment has taken a toll on my quality of life. I am a Field Biologist and am regularly out hiking on slippery rocks in the middle of the stream, far from cell service or medical care. It is my dream job and I have worked hard to get where I am as a program lead. While work has been incredibly flexible, almost all the sick leave I banked in the first two years is gone. With the diagnosis now as chronic, I am struggling with the decision to quit my job to find something safer. After all my reading on ITP, I am still not sure how to feel about this disease and how serious it really is. I am planning to try rituxan as a last ditch effort to put this into long term remission. I do not think I ever want to be back on Prednisone and am prepared to live with lower than normal counts to make that happen. I do not want to feel conquered by a blood count, but I do have more to live for than my job. I am curious how others have handled all the time off work for treatments and if anyone else has made career decisions based on ITP. Thanks for listening; I have found the information and personal stories on this site invaluable!