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vaccine or not ? 2 months 4 weeks ago #70841

  • bullet51
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New to Itp,was wondering if anyone, here,had ITP long term ,never ,getting treatments, numbers stable ?

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vaccine or not ? 2 months 4 weeks ago #70842

  • MelA
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There are a few threads about the vaccine - you can search for them.

Personally if I recently had a problem with my heart, and especially the widow maker, I'd be listening to my cardiologist and getting vaccinated!! I would not take a chance that I could get the virus and have more damage done to my heart or possibly die. My son has a friend [healthy not yet able to get the vaccine because isn't old, high risk, does not meet any of our state's requirements at this time ] who got the virus I think it was last November and as a result pericarditis and is still battling it.

I've had ITP since 1989 and after the 2 injections I did fine.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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vaccine or not ? 2 months 4 weeks ago #70849

  • bullet51
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so, you did have the vaccine? and no drop in platelets? thats good news, yes ,i do trust my cardio. doc. thanks, the aztrazenica vaccine was just banned in all of Europe, { blood clots] ,so yeah thats not one for me, my LAD was blood clot blockage, but the others should be fine,,

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vaccine or not ? 2 months 4 weeks ago #70850

  • momto3boys
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bullet51 wrote: saw my cardiologist,,for my 2 year check up,,,l.a.d. widowmaker, yeah, i beat it,, he says get the vaccine, said ,he knows all about ITP,,told me not to worry, But ,of course ,i worry,LOL,, anyways, anyone here have severe drop in platelets from the vaccine? mine have never been below 108,000, never had any treatment. had ITP at least 15 yrs, probably a lot longer ,15 years was all i could check back for blood test, ,,,was never alerted to it, until 6 months ago,, none of previous docs, were concerned,,i guess, numbers were not bad,,,but lower than normal..

I agree with Mel. If your cardiologist says to get the vaccine, then you really ought to follow his advice!
If you have never had a count below 108,000, I am surprised that they ever diagnosed you with ITP. I thought that they had modified the normal range of platelet count values a while back to being anything between 100,000 and 450,000 platelets. You haven't been out of the normal range if you've never been below 108,000, which is great! Since you have remained so high with your counts, any idea of ITP should really not be a concern for you with regards to the vaccine, so follow your cardiologist's advice and go for it. Good luck.
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vaccine or not ? 2 months 4 weeks ago #70853

  • mrsb04
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  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
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AZ vaccine has not been banned in all of Europe it is on hold in some countries despite the evidence of blood clots being flimsy to say the least.
The WHO statistics show that the incidence of clotting is no different to pre covid vaccinations but as per usual politicians think they know better than the medics and scientists. In my opinion it is scaremongering that will put people off being vaccinated thus prolonging this wretched pandemic.

This has just been posted on UK ITP association website

Over the last 36 hours a number of countries in Europe have suspended use of the Oxford/Astra Zeneca Covid-19 vaccine following some reports of blood clots in the period following vaccination. These fall into the category of Deep Vein Thrombosis (DVT) and pulmonary Embolus (PE). They have continued to use the Pfizer vaccine.

From an initial analysis, through the system of recording side-effects (the Yellow Card system in the UK) there have been 28 reports from the first 10 million Oxford/AZ vaccine and 25 from the first 11 million of the Pfizer vaccine. from this it is hard to see why the two products have been differentiated.

The two main regulatory bodies, the EMEA (European Medicines Agency) and the MHRA (the Medicines and Healthcare Products Regulatory Agency in the UK) have both confirmed their approval of the vaccines and have not identified blood clots as a problem. The WHO (the World Health Organisation) have said there is no reason to stop using the Oxford/AZ product.

To put blood clots (or thrombosis) into perspective there are about 2,500 recorded in the under 40s each year., which would be around 600 in the last three months. This incidence ranges from 1 in 10,000 of the under 40 population to as high as 1 in a 100 in the over 80s and, of course, it is in the older age ranges that the vaccines have been concentrated. The averages is about 1 in a 1,000 in the population as a whole. So far it is in the older age groups that the vaccines have been concentrated and there are additional risk factors that change the risk. These include, in addition to age, obesity, Diabetes, Pregnancy and hormonal treatments such as HRT and the oral contraceptive.

These figures suggest that we are seeing actually fewer episodes of thrombosis post vaccination than we would expect normally. This is not to suggest that the vaccination in anyway protects from blood clots but puts the actual problem in perspective. On the figures so far it is difficult to see why the politicians have made the decision they have, going against expert advice. This can only delay the rate of vaccination within Europe and has the additional downside of public distrust in the vaccination programme, with its potential consequences.

Professor Adrian Newland 16/03/2021

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vaccine or not ? 2 months 4 weeks ago #70854

  • MelA
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I did not have a drop in platelets [ gamma globulin triggered my ITP & the only shot I've gotten so far that has dropped my count was a tetanus booster ].

You do not live in the Europe right? So far the AZ vaccine isn't given here, but my understanding is it is safe. If you are going to get the vaccine get it now before they bring AZ here. I had Pfizer, if they had given me Moderna that woul dhave been fine too - I just didn't want to end up on a ventilator in the ICU nor end up with lung damage nor heart damage as my son's friend has.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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vaccine or not ? 2 months 4 weeks ago #70858

  • CindyL
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Steven and I are scheduled to get the Astra-Zeneca/Covishield vaccine. I wonder if this is the same as the one in the UK and is just a different name because we're in Canada?
I will admit that nothing relating to my ITP has ever scared me, even when counts were low. But I will admit, all this talk about some EU countries banning the AZ vaccine, has me a little worried. I've been lucky, I've not had too many side effects from any of my treatments.
And Canada is continuing on with this particular brand.
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vaccine or not ? 2 months 3 weeks ago #70878

  • JJ
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In truth there have been clotting events after the Pfizer vaccine too. But it's all passed now and hopefully Europe will get its act together and get people vaccinated.

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