Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Prescription Insurance 5 months 2 weeks ago #70661

  • Meredith
  • Offline
  • Posts: 63
  • Thank you received: 1
I have Medicare and Blue Cross as a secondary coverage. I have Humana prescription plan. As retired educators, our combined income is said to be too high for help with co pays. Consequently, I cannot afford the $5000. To $10,000 copay for Promacta, Doptelet, nor Tavalisse. Any suggestions would be extremely helpful.

Please Log in or Create an account to join the conversation.

Prescription Insurance 5 months 1 week ago #70662

  • mrsb04
  • Offline
  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
  • Posts: 1870
  • Karma: 7
  • Thank you received: 535
Meredith,
My heart goes out to you. I find it completely wrong that one has to pay insurance for health care and treatment is governed by ability to pay.
Thank goodness for our NHS.

Please Log in or Create an account to join the conversation.

Prescription Insurance 5 months 1 week ago #70663

  • MelA
  • Away
  • Posts: 848
  • Karma: 2
  • Thank you received: 273
Meredith have you looked into AARP gap insurance [I'm assuming you have medicare], they have a number of plans I understand
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

Prescription Insurance 5 months 1 week ago #70664

  • midwest6708
  • Offline
  • ~ Janet ~ Diagnosed Sept. 08
  • Posts: 372
  • Karma: 2
  • Thank you received: 82
I also get Part D from Humana, but a copay for Promacta would cost me $80 a month if I wanted to take it. The union group I'm in is large, so it has good bargaining power on plan costs to members. I'm taking NPlate mainly because it's completely covered under Part B as a medical treatment, unlike Promacta which is under Part D as a drug.
So my only suggestion is to shop plans and be ready to switch at the next open enrollment.
The following user(s) said Thank You: Tad Moody

Please Log in or Create an account to join the conversation.

Prescription Insurance 5 months 4 days ago #70729

  • sleev-les
  • Offline
  • Posts: 47
  • Thank you received: 4
It's interesting to hear that you don't qualify for the co-pay programs. I am in a higher earner bracket and asked this question in case I have to move to plan B which is Rituxan. Cost is astronomical as you mentioned about your list. When I asked the Hema about it, he stated he's never seen someone disapproved. I am also in a program like this for Eylea which is an injectable I have to get for diabitic retinopathy every 8 weeks. It brings my out of pocket from $300 an injection to $25ish an injection. I hate that insurance still costs so much out of pocket. I hope you find a way to get a good treatment.

Please Log in or Create an account to join the conversation.

Prescription Insurance 4 months 2 weeks ago #70812

  • ImPatient
  • Offline
  • Posts: 125
  • Thank you received: 19
Meredith did you try to write to the companies for advice directly? I don't know if that's helpful at all. I'm currently not returning to the US because I wouldn't know how to afford it either.

Please Log in or Create an account to join the conversation.

Prescription Insurance 4 months 2 weeks ago #70813

  • Meredith
  • Offline
  • Posts: 63
  • Thank you received: 1
Yes
I have government insurance snd make over $50,000.
Sad, but true

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member Badge 2021THSNA logo