TOPIC:

Hospitalized for 7 weeks now, any advice helps. 1 year 3 months ago #70568

gozorakgogo Offline Posts: 133 Thank you received: 17	where did you go and what did you do as soon as you escaped?
	Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 10 months 2 weeks ago #71648

Zach Tarver Offline Posts: 23 Thank you received: 1	Been a long time since I’ve updated, I got out of the hospital after 2 months with platelets at 0 basically. 2 weeks out of the hospital and my numbers went up to 300,000. I’ve been in that range for the last 6 month now! Get weekly Nplate dose of 1 and I’m almost off cyclosporine
	Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 9 months 3 weeks ago #71697

mhprice2000@msn.com Offline Posts: 16 Thank you received: 1	Glad you escaped! I keep having to go back in now and then when my count gets too low. Hoping yours stays up and you stay out of there!
	Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 6 months 3 weeks ago #71881

amberyard Offline Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC Posts: 650 Thank you received: 20	Everyone deals with ITP differently. I was 0k-3k for a whole month, went to infusion center every morning to get a bag of platelets then went to work. I'm only hospitalized when bleeding won't stop or for my spleen removal (which didn't help). Currently I get n-plate every Tuesday with CBC.
	Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 3 months 4 days ago #72172

MariLinTx
Offline
Ret. RN/attorney, wife/mom/grandma diagnosed 2/1/22 with ITP. Fear has worn off as Doptelet is working; now I’m told I need Plavix b/c of a significantly blocked artery. I am so scared having ITP, CAD, uncontrollable BP, renal disease & mobility issues.
Posts: 6
Thank you received: 0

I am SO sorry to hear your hospitalized so long. I’m so new to this diagnosus too -3 weeks. I spent 4 days in hospital with IVig and steroids . Sent home with numbers in 70s. Then quickly dropped to 50s and 20s. More steroids outpatient and IVig. Counts get to 50 and drop about 10,000 per day ☹️. Scheduled for marrow biopsy next and Ritumax (sp?) infusion outpatient. No talk of Readmittance unless numbers get below 20. I’ve not had any bleeding though. Found count at 7 only through routine labs and a few ‘bruises’ of unknown origin on my arms.
Best of luck to you. I hope things stabilize snd you get home soon.

Please Log in or Create an account to join the conversation.