Been a long time since I’ve updated, I got out of the hospital after 2 months with platelets at 0 basically. 2 weeks out of the hospital and my numbers went up to 300,000. I’ve been in that range for the last 6 month now! Get weekly Nplate dose of 1 and I’m almost off cyclosporine
Everyone deals with ITP differently. I was 0k-3k for a whole month, went to infusion center every morning to get a bag of platelets then went to work. I'm only hospitalized when bleeding won't stop or for my spleen removal (which didn't help). Currently I get n-plate every Tuesday with CBC.
Ret. RN/attorney, wife/mom/grandma diagnosed 2/1/22 with ITP. Fear has worn off as Doptelet is working; now I’m told I need Plavix b/c of a significantly blocked artery. I am so scared having ITP, CAD, uncontrollable BP, renal disease & mobility issues.
Thank you received: 0
I am SO sorry to hear your hospitalized so long. I’m so new to this diagnosus too -3 weeks. I spent 4 days in hospital with IVig and steroids . Sent home with numbers in 70s. Then quickly dropped to 50s and 20s. More steroids outpatient and IVig. Counts get to 50 and drop about 10,000 per day ☹️. Scheduled for marrow biopsy next and Ritumax (sp?) infusion outpatient. No talk of Readmittance unless numbers get below 20. I’ve not had any bleeding though. Found count at 7 only through routine labs and a few ‘bruises’ of unknown origin on my arms.
Best of luck to you. I hope things stabilize snd you get home soon.
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