Be a part of the ITP community and stay informed.
Login to your account or REGISTER.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Hospitalized for 7 weeks now, any advice helps.
  • Page:
  • 1
  • 2

TOPIC:

Hospitalized for 7 weeks now, any advice helps. 2 years 1 week ago #70568

  • gozorakgogo
  • Offline
  • Posts: 135
  • Thank you received: 18
where did you go and what did you do as soon as you escaped?

Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 1 year 6 months ago #71648

  • Zach Tarver
  • Offline
  • Posts: 23
  • Thank you received: 1
Been a long time since I’ve updated, I got out of the hospital after 2 months with platelets at 0 basically. 2 weeks out of the hospital and my numbers went up to 300,000. I’ve been in that range for the last 6 month now! Get weekly Nplate dose of 1 and I’m almost off cyclosporine

Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 1 year 6 months ago #71697

  • mhprice2000@msn.com
  • Offline
  • Posts: 16
  • Thank you received: 1
Glad you escaped! I keep having to go back in now and then when my count gets too low. Hoping yours stays up and you stay out of there!

Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 1 year 3 months ago #71881

  • amberyard
  • Offline
  • Lowest count 0-1k highest count 1,247,000 11/2/21. 189,000 N-Plate 527 Weekly CBC
  • Posts: 650
  • Thank you received: 20
Everyone deals with ITP differently. I was 0k-3k for a whole month, went to infusion center every morning to get a bag of platelets then went to work. I'm only hospitalized when bleeding won't stop or for my spleen removal (which didn't help). Currently I get n-plate every Tuesday with CBC.

Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 11 months 2 weeks ago #72172

  • MariLinTx
  • Offline
  • Ret. RN/attorney, wife/mom/grandma diagnosed 2/1/22 with ITP. Fear has worn off as Doptelet is working; now I’m told I need Plavix b/c of a significantly blocked artery. I am so scared having ITP, CAD, uncontrollable BP, renal disease & mobility issues.
  • Posts: 6
  • Thank you received: 0
I am SO sorry to hear your hospitalized so long. I’m so new to this diagnosus too -3 weeks. I spent 4 days in hospital with IVig and steroids . Sent home with numbers in 70s. Then quickly dropped to 50s and 20s. More steroids outpatient  and IVig. Counts get to 50 and drop about 10,000 per day ☹️.  Scheduled for marrow biopsy next and Ritumax (sp?) infusion outpatient. No talk of Readmittance unless numbers get below 20. I’ve not had any bleeding though. Found count at 7 only through routine labs and a few ‘bruises’ of unknown origin on my arms. 
Best of luck to you. I hope things stabilize snd you get home soon. 

Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 7 months 3 days ago #72459

  • Toby-Wan-Kenoby
  • Offline
  • Posts: 40
  • Thank you received: 1
I have been down to 0 count and my base level is 2. Also thought I was invincible. Never had a nose bleed. Worst was couple of blood blister in my mouth. 
Last Monday I had a 5 minute episode where I first lost mobility in my right hand fingers and then lost the ability to speak. Drove to the nearest hospital. CT confirmed small brain bleed platelet transfusion stopped that. Still 2 day stay. Now I am scared of low levels. I just measured myself after IVIG yesterday at 11 and today it’s down to 9 again. It’s scary. 
Diagnosed 7/2019 let the fun begin...

Please Log in or Create an account to join the conversation.

Hospitalized for 7 weeks now, any advice helps. 7 months 2 days ago #72462

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2077
  • Karma: 7
  • Thank you received: 596
TOBY1
Are you being cared for by haematologists who specialise in ITP?
Were you not given TXA?  
Platelet transfusion is a waste of a donation  if it is a platelet destruction ITP.
IVIg is only ever a temporary fix (if it works) and can cause Hep B +ve antibodies. 

Please Log in or Create an account to join the conversation.
  • Page:
  • 1
  • 2
Forum
Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Hospitalized for 7 weeks now, any advice helps.

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo