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ITP and COVID-19 vaccine

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3 years 3 months ago #70373 by ann54246
ITP and COVID-19 vaccine was created by ann54246
14 years ago I had a flu shot and 12 days later I was in the ICU with ITP. PLATELETS WERE AT A CRITICAL COUNT.,
The Dr.s said that it was interesting about the flu shot, but wouldn't say that it was the cause. I have been in remission for 11 years now. I have never had another flu shot but wondering if anyone else has had this connection. Second thing is that I am wondering about the Covid shot what do you think get it or not thank you.

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 3 months ago #70374 by mrsb04
Replied by mrsb04 on topic ITP and COVID-19 vaccine
Only you can make the decision regarding having or not having the Covid vaccine.
What I know is a vaccine may drop my count (the annual flu one never does, nor did my HepB booster).
However a virus will almost certainly drop my count, usually down to symptomatic single figures requiring Prednisolone rescue treatment. Therefore I will be having a Covid vaccination.
The following user(s) said Thank You: Christine, ann54246

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3 years 3 months ago #70426 by florence
Replied by florence on topic ITP and COVID-19 vaccine
This is what I worried. Recent news about a death which may link ITP with the vaccine is as below:
www.local10.com/news/local/2021/01/07/did-miami-beach-doctor-56-die-from-receiving-covid-19-vaccine/?outputType=amp
This doctor got severe ITP after the vaccine.

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 3 months ago - 3 years 3 months ago #70428 by mrsb04
Replied by mrsb04 on topic ITP and COVID-19 vaccine
Was his treatment adequately addressing his ITP ? would be my question.

The UK ITP association has published a FAQ's section regarding Covid 19 and Vaccination. I hope it will not be frowned upon by me copying and posting this but in the current climate of a worldwide pandemic I think it should be OK.
Q: I was diagnosed with ITP and although it was never proven, they believed that it was triggered by my typhoid injection. Since the age of 17 (I am now 28 years old), I have been ITP free, and my platelet count has been 'normal'. I still have an annual blood test to check on my platelet count, but I am cautious about getting the COVID vaccine in case it triggers my ITP again.
A: A reduced platelet count has been reported in very small numbers of patients after vaccination for many different viruses, including the common ones, such as measles- mumps-rubella (MMR), Haemophilus influenza, hepatitis B virus, human papilloma virus, varicella-zoster, diphtheria-tetanus-pertussis(DTap), polio, and pneumococcus. The reduction is usually relatively mild and is transient.
In the patient with underlying ITP, however, it may be more marked but is still usually only a short-term problem. It has been shown that the risk is less than 10 per million doses of vaccine, covering all the common vaccines. The COVID-19 vaccine trials have not reported this in the studies so far. The numbers given the vaccine are far less. Although it remains a possibility, the risks are outweighed by the benefits of receiving the vaccine. In Covid- 19 infection thrombocytopenia is relatively frequent occurring in up to 10% of patients with mild disease and 20% in those who are severely affected. It is recognised that in patients with ITP the platelet count may fall markedly in any patient who becomes infected.

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3 years 3 months ago #70431 by MelA
Replied by MelA on topic ITP and COVID-19 vaccine
I'm in a virtual line to get the vaccine - meaning those in 1A are getting it now, and my State has said to go on to those in 1B [me]. I had the vaccine explained to me and since it has no live or dead covid in it I'm ok with it - will email my hematologist to see what he says but I think he'll say go for it. I do seem to react to injections, some injections such as gamma globulin [which triggered my ITP] and tetanus boosters - never had a problem with flu shots - so is a reaction to the vaccine worse than having the virus, that's what is on my mind.

mrsb you brought up a good point - was that doctor's treatment adequate. Also in reading that article it is said questions remain about his death and it's not clear if his death is due to the vaccine.

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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3 years 3 months ago #70436 by gozorakgogo
Replied by gozorakgogo on topic ITP and COVID-19 vaccine
here in Virginia is appears that I qualify as a vaccine recipient as a Mail Carrier 1b before my being ritux immunocompromised 1c. In any event, I expect to be receiving within the next 2 weeks the first injection

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3 years 3 months ago #70480 by Ellbell
Replied by Ellbell on topic ITP and COVID-19 vaccine
Yes I had my first ever and only flu shot in 2008 and within less than two weeks, I was covered in bruises and then hospitalized with itp. Doctors questioned me over and over about whether I'd had a recent viral or bacterial illness and I'd had none in the two years prior. I mentioned my first ever flu shot, but doctors were not interested about it. I've since seen journal articles linking the flu shot to itp and have not had another flu shot. I have been in remission since 2009 and still plan to get the covid vaccine.

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3 years 3 months ago #70481 by gozorakgogo
Replied by gozorakgogo on topic ITP and COVID-19 vaccine
yeah, I think im going to hold off on getting the vaccine until more is known

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3 years 3 months ago #70482 by ann54246
Replied by ann54246 on topic ITP and COVID-19 vaccine
This sounds so much like me it is scary. I did have the COVID-19 VACCINATION about a week ago and so far so goo.

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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3 years 3 months ago - 3 years 3 months ago #70484 by mrsb04
Replied by mrsb04 on topic ITP and COVID-19 vaccine
I think im going to hold off on getting the vaccine until more is known wrote gozorakgogo.
I won't, I shall have it as soon as it is offered to me. I know for sure if I get any virus my platelet count hits the gutter, needing a rescue remedy of high dose steroids and probably anaemia again from the nosebleeds I will have to endure until my count is back up.

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