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Back when my friend got Rituxan for ITP it was 8 - it took care of her ITP and her RA.
Today starts your taper.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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You are going from 10mg to no prednisone? The body naturally makes I think it is 7 .5 [mrsb is that right?] - so if you have been on more than that the body stops making it - I thought one needed to go slower to 0 pred so that the body would kick in and start making it again.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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Chad:- I went through hell the first time I tried tapering. I created the topic below in the hope that no-one else has to suffer. Please read it
pdsa.org/discussion-group/5-newly-diagnosed-a-frequently-asked-questions/30450-advice-for-anyone-new-to-steroid-tapering.html#67676
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CindyL wrote: If my memory serves me correctly, I do believe I went from 10 to 7.5; then to 5 ending at 2.5. And I think I stayed there for quite a while before getting off them completely. This was done slowly.
^^This
I am at the 7.5mg now and doc already stated that we may not be dropping each week. When we do drop it will only be by 2.5mg so no matter what my bloodowork is (assuming it is stable or higher) I could be at the same dose for another week or so.
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Very wise Chad. Personally I'd stick at 7.5 for two weeks.
Have you asked for some 1mg tabs in case a 2.5mg drop is too much? Much easier to manipulate dose with 1mg tabs.
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Im an "essential worker" working in the public. Ive been out in the world this whole pandemic except for the 7 week out of work staycation I had because of my ITP hospitalization/diagnosis/Retux treatments/getting my levels up to a decent level back in july/aug. Im guessing having ones immune system kneecapped by Ritux cant be a helpful thing but sometimes there isnt much you can do about it other than take precautions and not think about it.
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I looked up rituxin and Covid and it seems it does cause worse outcomes in people with MS and rheumatological disorders. Those people have underlying conditions which may have contributed to the outcome. Heres just one link. There are a number of articles. One article said prednisone 10mg contributed to worse outcomes also.
ard.bmj.com/content/early/2020/06/25/annrheumdis-2020-218075
Best to be very cautious these days. I was considering rituxin low dose but think I'll wait. I'm on Nplate now. I've had rituxin once, I was in my 50s, 4 full doses and went through a flu season without getting a cold or anything. That is unusual for me. My counts were brought up a bit and it lasted 6mos with no side effects. Stay safe out there everyone!
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I hated Pred. It had some positive effects. I never had or felt depression. I actually had a happy high for the first few weeks and I noticed my gaming on Xbox improved. I had a bit more clarity even though I was up all night. The insomnia I didnt mind because I wasnt working and I could nap if I needed to even though I didnt. The insomnia was bad however because I was up all night and I would become euphoric around 4 am because that meant that Hardee's would open in 1 hour. My appetite was insane. Ive always eaten only one meal a day with no difficulty ignoring feeling hungry. Not while on the Pred. I wasnt even supposed to be driving but I went every morning at 5 am for two weeks and would get a country ham biscuit, a chicken biscuit, a steak biscuit, a large Coke and stop by 7-Eleven to buy donuts. That was only breakfast. I gained 15 lbs in a month and although I have been able to lose weight, my body proportions are not the same as they were before Pred. Pred created a ghastly spare tire that is not going away as quickly as the weight gain. I hate you PREDNISONE!!!! lol
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