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Intro: Newly Diagnosed
- sleev-les
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- MelA
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"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- sleev-les
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- mrsb04
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- MelA
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My old hematologist would say 61k is the same as 50, or 53k.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- sleev-les
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MelA wrote: That's good. I hope for you stable counts & above 60k!
My old hematologist would say 61k is the same as 50, or 53k.
He say's 10% variance is his gauge so ~5k or so up and down. I think he held off since I went up to 70/77 then down to 51 so 20k could be a decent drop. Who knows, could have been fighting a bug or god knows any other reason that could cause a shift. Just glad they are back at my average range.
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- sleev-les
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My journey continues. Had 2 weeks of 61k. Then last week I never heard from my Doc about results. Called on Thursday to get the status (draws are done each Monday and I get results and pred guidance on Tues, Wed morning latest). Got the one front desk person that I'm not fond of. Rudeness in her voice and talks to you like you're a child. I asked for my results and guidance on Pred and she says that if they need to call me they will. I told her they need to call me since im tapering pred and would like to know what my CBC is. She stated she'd leave a message and I never heard back. Of course they were closed Friday. I'm saying something today about it and that this is the second time I was basically talked to by this one person as if I'm bother her by calling.
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- MelA
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Knew, just a feeling, my count had dropped good after a tetanus booster so called PCP & had labs done. When the call came in with the results no one was home - the message on the machine was from a partner in the practice: Your count is low if you aren't feeling better in 2 weeks call us. [not exact words since this was back in 2002].
1. - Low, what do you mean low?
2. - not feeling better?? I NEVER said I felt bad!
So I got in my car, drove to the doctor's office, put my elbows on the counter and said [not asked, said] What is my count!!!
Well it was low, it was crashing - I ended up getting back with my hematologist & having treatment.
Also have you mentioned to the doctor or the office manage how rudely you were treated & have been treated in the past? I'm sorry you were treated that way, there is no excuse for that at all!! Does she know you are helping to pay her salary?!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- midwest6708
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- ~ Janet ~ Diagnosed Sept. 2008
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- sleev-les
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On top of that this is the week I have to get an eye injection for my diabetic retinopathy. So I need to make sure I'm in a safe range.
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- sleev-les
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- MelA
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Basically 51k & 69k would be the same, at least my former hematologist would say that.
Sorry about your diabetic retinopathy - good that something can be done though. My stepmom get a shot in her eye for macular degeneration.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- mrsb04
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- sleev-les
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Your stepmom is most likely on the same or similar medicine. I was on Lucentis which had a 4 week life. I moved over to Eylea in the spring since it holds for 2 months. I also get laser sometimes for a more perminant solution. Just had focal laser on the macula this past Thursday to keep some fluid off the macula. I have macular edima(sp?) in conjunction with the retinopathy.MelA wrote: That is really good news sleeve-les !
Basically 51k & 69k would be the same, at least my former hematologist would say that.
Sorry about your diabetic retinopathy - good that something can be done though. My stepmom get a shot in her eye for macular degeneration.
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- sleev-les
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