Be a part of the ITP community and stay informed.
Login to your account or REGISTER

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1


Waiting.... 3 years 7 months ago #69467

  • Hb99*
  • Offline
  • Posts: 6
  • Thank you received: 0
Hi there,

I went for my first hematology appt on Tuesday and they did a million blood tests. I can only see a hand full of results in my patient portal (only ferritin, hepatitis, LDH and folate) and the rest are not in there. I have an abdominal US next week and then I’ll see my hemo again on the 27th. Does anyone have a list of blood tests that their hemo did? I wish I would have taken a photo of the lab order. Also, any idea why my labs aren’t in the portal yet? I’m super anxious about this whole thing and it just seems to be dragging out...

Please Log in or Create an account to join the conversation.

Waiting.... 3 years 7 months ago #69469

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2163
  • Karma: 7
  • Thank you received: 626
I suggest you ask your haemo what tests were done. There are guidelines as to what should be done but many doctors have their own ideas as to what to test for.

Please Log in or Create an account to join the conversation.

  • Page:
  • 1
Charity Navigator
GuideStar Seal
NORD Member Badge
THSNA logo
THSNA Summit 2024
April 3-6th