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Scared and not sure if I have ITP yet 3 years 7 months ago #69388

  • Hb99*
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I am (or at least I thought) I was a healthy 29 yr old female. I went to a gyn appt where they took blood and my platelets came back at 46,000. They repeated the test and it was 52. I went to my GP who tested again. And they were at 43. Now I’m being referred to a hemo and I am scared to death. All of my other blood work has been perfect... just really low platelets. Any advice or comfort? I am scared, I have a husband and a 3 year old child. This whole thing has made my anxiety go through the roof.

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Scared and not sure if I have ITP yet 3 years 7 months ago #69390

  • RR01
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Dont worry , low platelets might be ITP or even might be a temporary thing due to any medicines you had taken, that is what my doctor said - even environmental toxins might cause a drop in platelets temporarily . Even if you get diagnosed with ITP there are treatment options , everyone here is soo helpful they can provide you with more info . My platelets are in the 40000 range and I am just somehoe managing without treatment for now.

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Scared and not sure if I have ITP yet 3 years 7 months ago #69391

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Try not to worry. Latest guidelines recommend watch and wait if count is above 30k

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Scared and not sure if I have ITP yet 3 years 7 months ago #69444

  • acosta02151
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I am currently at 45,000 without any medications or any symptoms. I have been being followed for close to two years. I was recently diagnosed with ITP after changing hematologists at MGH. I am hoping that I can continue without any treatment and stay active. It is scary at first, especially when there is no diagnosis. I went twenty months w/o diagnosis and had many blood tests as well as a bone biopsy with no answer. Now that I know that I have ITP, I feel better knowing what I have.

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Scared and not sure if I have ITP yet 3 years 7 months ago #69466

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I went to my first hematology appt on Tuesday and they did a million blood tests. I can only see a hand full of my results in the patient portal. Do you know exactly what blood tests were done? I’ve had three CBCs before my hematology workup.

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Scared and not sure if I have ITP yet 3 years 7 months ago #69472

  • ImPatient
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It is scary not to know what's happening. Hopefully, your doctors can provide some more info for you soon and reading here makes you feel a bit less worried.

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Scared and not sure if I have ITP yet 3 years 6 months ago #69512

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Thank you!

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