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Depixol - this medication may be causing my ITP.
- stephen_mca
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I just discovered that a known, though uncommon side-effect of it is Thrombocytopaenia.
My ITP started round about the time I was put on this medication. (I'm male / 57 YO / no other relevant health problems.)
My platelet count is stable in the 30-70,000 range.
I haven't had any bleeds - just infrequent slight bruising and petechiae.
I had a bone marrow biopsy ages ago which was negative.
I'm thinking I should change or stop this medication now that I've discovered that ITP is a known side-effect of it.
Does anyone have any views or experience of this particular issue?
All advice welcomed.
Thanks.
Stephen.
57 YO with ITP since 2010 / 30-70,000 count
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Guidelines are adopt a watch and wait approach for asymptomatic counts of ≥30.
In depends how comfortable you are with your counts/symptoms.
Personally if I could maintain a count of ≥30 I would not take any meds for my ITP but unfortunately I can't.
If you needed a higher count e.g. for any procedures that require a higher count a rescue remedy could be given to elevate count for cover.
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- stephen_mca
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I don't need any procedures right now but it's a possibility I do think about and I would not welcome a transfusion in case of hidden infections. (I remember people getting Hepatitis and HIV from transfusions.)
Anyway, I wasn't aware of other methods of bringing up the platelet count — something I'll read up on.
Cheers,
Stephen.
57 YO with ITP since 2010 / 30-70,000 count
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- MelA
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Have you talked with your doctor about your thoughts on Depixol? I would.
Here is something about ITP treatments from this site:
pdsa.org/treating-itp.html
Good luck!
.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD
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- stephen_mca
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I'm going to discuss stopping this medication with my doctor as I'm pretty sure I don't need it.
The fact that it can cause thrombocytopaenia is is something I just recently discovered.
I'm off to look at the link you posted now.
Stephen.
57 YO with ITP since 2010 / 30-70,000 count
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- JJ
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- stephen_mca
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57 YO with ITP since 2010 / 30-70,000 count
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
- Posts: 2166
- Thank you received: 628
That's a new one on me. What is your evidence base?
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- JJ
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- mrsb04
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- ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
- Posts: 2166
- Thank you received: 628
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- JJ
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- Thank you received: 79
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