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Itp and cold

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4 years 3 months ago #68460 by starla
Itp and cold was created by starla
I have been diagnosed last year with however a high coubt around 100.
Last week my counts went down to 49.
I had a cold with a little fever (around 38°)
Do you think the cold is a cause of this crash in numbers?
I have to check every 3 days my numbers because doctors dont know if it's going down quickly or if i mnm that low from longer time (last check was December 12th count of 127).
Thank you.
I know i m. Lucky because for now no number under 20 but i m worried.

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 3 months ago #68462 by mrsb04
Replied by mrsb04 on topic Itp and cold
My count always drops when I have a cold.

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4 years 3 months ago - 4 years 3 months ago #68465 by MelA
Replied by MelA on topic Itp and cold
A cold could cause a count to drop - but it never has for me. We are all different however.
When is y our next platelet count?

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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  • Hal9000
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  • Give me all your platelets and nobody gets hurt
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4 years 3 months ago - 4 years 3 months ago #68508 by Hal9000
Replied by Hal9000 on topic Itp and cold
IMHO, I'd be more concerned with getting treated when a possible ITP symptom pops up, than a platelet count in X days. While it is easy for me to say since I have lots of hindsight under my belt in regards to low counts, I'd be tempted to tell them they can check counts again in a month. A 50 is a good count.

It's almost like some doctors feel the need to convince patients that ITP can be an emergency in the beginning by leveraging frequent testing. But, here you are, worried about ITP. Doesn't sound you need to be convinced that ITP can be an emergency.

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4 years 3 months ago #68516 by JJ
Replied by JJ on topic Itp and cold
I wouldn't be checking every three days especially with a count of 49. I'd do as Hal says, check in a month unless some symptoms appear.

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  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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4 years 3 months ago #68518 by mrsb04
Replied by mrsb04 on topic Itp and cold
I agree testing every 3 days os OTT. Doctors seem to worry about low counts more than we do

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  • ecoclayton
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  • Diagnosed with ITP 5/23/19
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4 years 3 months ago #68524 by ecoclayton
Replied by ecoclayton on topic Itp and cold
I agree that too much testing does not help and in fact was too stressful for me. My first Dr had me testing 2 times a week and was very worried each visit. She even made a comment that I could bleed out if I got cut while on vacation. After that comment my wife and I immediately started looking for a new Dr. My new Dr is much more mellow and of the wait and watch mindset. At my last appt my counts were at 39 and she was like, ok see you in 2 weeks. My first Dr would have been sounding the alarms.

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4 years 3 months ago - 4 years 3 months ago #68525 by MelA
Replied by MelA on topic Itp and cold
Every 3 days is a lot! If every 3 days why not every day. A platelet count changes from day to day, and within the day.

After my 1st knee replacement last year and needing to take 2 baby aspirin a day for 30 days to help prevent a blood clot my then hematologist told me to test every week to make sure platelets ok - she said this before the surgery so I started with a new hematologist close to my home and he said test after 2 weeks of baby aspirin and if ok then don't need to test again. I test now every few months, but if I feel something is out of whack or have symptoms then I'll ask for a count to be done.

By the way ecoclayton on Jan 16, 2018 I didn't see a curb and fell, hit my head on the edge or corner of a stone/brick planter of some sort and split my head open and bled like crazy (and I mean the bleeding was unreal!)- also broke my left shoulder. Ambulance ride to the hospital where they did a head CT to look for bleeding, it was fine, and needed 3 staples to close the wound. But my brother in law who does not have ITP fell and hit his head on his tile floor and ended up with a brain bleed. You just don't know.

"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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4 years 3 months ago #68530 by CindyL
Replied by CindyL on topic Itp and cold
The year I was diagnosed, I was getting tested once a week. Depending on what my counts were, I would stay for IVIG treatment.

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