TOPIC:

I have been diagnosed last year with however a high coubt around 100.
Last week my counts went down to 49.
I had a cold with a little fever (around 38°)
Do you think the cold is a cause of this crash in numbers?
I have to check every 3 days my numbers because doctors dont know if it's going down quickly or if i mnm that low from longer time (last check was December 12th count of 127).
Thank you.
I know i m. Lucky because for now no number under 20 but i m worried.

My count always drops when I have a cold.

A cold could cause a count to drop - but it never has for me. We are all different however.
When is y our next platelet count?

IMHO, I'd be more concerned with getting treated when a possible ITP symptom pops up, than a platelet count in X days. While it is easy for me to say since I have lots of hindsight under my belt in regards to low counts, I'd be tempted to tell them they can check counts again in a month. A 50 is a good count.

It's almost like some doctors feel the need to convince patients that ITP can be an emergency in the beginning by leveraging frequent testing. But, here you are, worried about ITP. Doesn't sound you need to be convinced that ITP can be an emergency.

I wouldn't be checking every three days especially with a count of 49. I'd do as Hal says, check in a month unless some symptoms appear.

I agree testing every 3 days os OTT. Doctors seem to worry about low counts more than we do

I agree that too much testing does not help and in fact was too stressful for me. My first Dr had me testing 2 times a week and was very worried each visit. She even made a comment that I could bleed out if I got cut while on vacation. After that comment my wife and I immediately started looking for a new Dr. My new Dr is much more mellow and of the wait and watch mindset. At my last appt my counts were at 39 and she was like, ok see you in 2 weeks. My first Dr would have been sounding the alarms.

Every 3 days is a lot! If every 3 days why not every day. A platelet count changes from day to day, and within the day.

After my 1st knee replacement last year and needing to take 2 baby aspirin a day for 30 days to help prevent a blood clot my then hematologist told me to test every week to make sure platelets ok - she said this before the surgery so I started with a new hematologist close to my home and he said test after 2 weeks of baby aspirin and if ok then don't need to test again. I test now every few months, but if I feel something is out of whack or have symptoms then I'll ask for a count to be done.

By the way ecoclayton on Jan 16, 2018 I didn't see a curb and fell, hit my head on the edge or corner of a stone/brick planter of some sort and split my head open and bled like crazy (and I mean the bleeding was unreal!)- also broke my left shoulder. Ambulance ride to the hospital where they did a head CT to look for bleeding, it was fine, and needed 3 staples to close the wound. But my brother in law who does not have ITP fell and hit his head on his tile floor and ended up with a brain bleed. You just don't know.

The year I was diagnosed, I was getting tested once a week. Depending on what my counts were, I would stay for IVIG treatment.