I’m new to ITP, less than a week with my diagnosis. I am wondering how or when you decided to tell your family and friends. I am not having many symptoms and kind of accidentally found that my numbers were falling.
Diagnosis of ITP in 2014. Ex renal specialist nurse. I retired in Nov 2019 after 46 years on the front line. I firmly believe in empowering patients to be involved as much as possible in their care; always question medics about the evidence base they use.
Thank you received: 421
Would have been difficult for me to hide it from anyone I was covered in bruises. I told people as soon as I was diagnosed.
Hope you have told your family already:) And I HOPE that your platelets count went all the way back to normal or stopped in the "safe" zone. Just wan to share from my experience, expect my husband and kids nobody really remembers that I have ITP. And they forget sometimes as well. It's been year and a half and I have not had any treatments, except Promacta before surgery.
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