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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Prednisone Crash
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Prednisone Crash 3 years 7 months ago #67821

  • Meredith
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I started with 60 mg of Prednisone in Mid August
I had four infusions of Rituxan
My platelets went up and are continuing to go up

I have been on the Prednisone taper for several weeks now. When I got down to 30 mg per day, I began to feel extremely tired and weak with muscle and joint pain.

Now I am at 10 mg and still feeling the same—- however not quite as extreme.

Has anyone else experienced this?
Do you think I need an adrenal test

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Prednisone Crash 3 years 7 months ago #67822

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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Classic pred withdrawal symptoms. Taper is too fast for you. Some people manage a faster taper than others. My GP suggested women find it harder than men.
See link below. I started this topic a couple of weeks ago as in the past I suffered dreadfully by having doses reduced too fast initially.
pdsa.org/discussion-group/5-newly-diagnosed-a-frequently-asked-questions/30450-advice-for-anyone-new-to-steroid-tapering.html
No point getting your adrenals checked yet. Unless you are below physiological dose of approx 7.5mg/day the result will be spurious.
The following user(s) said Thank You: Meredith

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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Prednisone Crash

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