Be a part of the ITP community and stay informed.
Login to your account or REGISTER

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC: Prednisone Crash

Prednisone Crash 8 months 2 weeks ago #67821

  • Meredith
  • Offline
  • Posts: 38
  • Thank you received: 0
I started with 60 mg of Prednisone in Mid August
I had four infusions of Rituxan
My platelets went up and are continuing to go up

I have been on the Prednisone taper for several weeks now. When I got down to 30 mg per day, I began to feel extremely tired and weak with muscle and joint pain.

Now I am at 10 mg and still feeling the same—- however not quite as extreme.

Has anyone else experienced this?
Do you think I need an adrenal test

Please Log in or Create an account to join the conversation.

Prednisone Crash 8 months 2 weeks ago #67822

  • mrsb04
  • Offline
  • Diagnosis of ITP in 2014. Ex renal specialist nurse. I retired in Nov 2019 after 46 years on the front line. I firmly believe in empowering patients to be involved as much as possible in their care; always question medics about the evidence base they use.
  • Posts: 1524
  • Karma: 7
  • Thank you received: 390
Classic pred withdrawal symptoms. Taper is too fast for you. Some people manage a faster taper than others. My GP suggested women find it harder than men.
See link below. I started this topic a couple of weeks ago as in the past I suffered dreadfully by having doses reduced too fast initially.
No point getting your adrenals checked yet. Unless you are below physiological dose of approx 7.5mg/day the result will be spurious.
The following user(s) said Thank You: Meredith

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

BBB Cleveland logo GuideStar Seal NORD Member Badge 2018THSNA logo