Be a part of the ITP community and stay informed.
Login to your account or REGISTER.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Adults With ITP
Newly Diagnosed & Frequently Asked Questions
All of a sudden, I'm on this journey of ITP
  • Page:
  • 1

TOPIC:

All of a sudden, I'm on this journey of ITP 3 years 10 months ago #67118

  • hoju1959@gmail.com
  • Offline
  • Posts: 4
  • Thank you received: 0
Three weeks ago, my 30-year-old daughter, Carolyn, was admitted to the ER with a very low platelet count. It took us all by surprised. She had steroids and IVIG, neither of which worked. Today, we're getting WinRho. Tomorrow, we start four infusions of retuximab. Feeling scared. What's next? Where is this going?

Please Log in or Create an account to join the conversation.

All of a sudden, I'm on this journey of ITP 3 years 10 months ago #67154

  • karenr
  • Offline
  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
  • Posts: 465
  • Thank you received: 58
This is a good place to be on your journey. Read about the disorder and the treatments on this website. You may get more responses to your treatment questions if you post them on the General Treatment section. Many of us have had ITP for years, and we've learned how to live with it. One can have a full and rich life even with ITP.

Please Log in or Create an account to join the conversation.
  • Page:
  • 1
Forum
Adults With ITP
Newly Diagnosed & Frequently Asked Questions
All of a sudden, I'm on this journey of ITP

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo