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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Is this for real?
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Is this for real? 3 years 10 months ago #67096

  • ScaredITP
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Undiagnosed yet, they're unsure

Platelets as follows :

2013: 161
2014: 202
2018: 141
2018: 151 (4 days after the first 2018 one)
2019: 134
2019 : 122 (4 days after the first 2019 one)

Is this ITP?

Or am I just normally low on platelets?

Has anyone started normal and slowly gone down in platelets before they had the itp diagnosis?

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Is this for real? 3 years 10 months ago #67101

  • ecoclayton
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  • Diagnosed with ITP 5/23/19
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ScaredITP,
I don't think you can diagnose this as ITP at this point. You only have 2 counts that are actually below what is considered normal (less than 140). I was not diagnosed until a year and a half after my first low count of 102 in August of 2017. The doctors didn't even mention that I was low at that 102 count. Not until I was at 41 in February 2019 did doctor refer me to a hemo. There are many more people on here that have much more experience than me with this, but I would say don't get too worried as these numbers are not that low. Take a look at these forums to educated yourself. Also take a look at your diet and meds to see if that could be the culprit.

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Is this for real? 3 years 10 months ago #67111

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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In the UK you would not be classed as having ITP unless count below 100

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Is this for real? 3 years 10 months ago #67116

  • MelA
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I was diagnosed in 1989 with a count of 11,000 and dropping. The lab never even flags my count as L (for Low) if it is above 100,000.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Is this for real? 3 years 10 months ago #67119

  • Carcamoc10
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Personally, I would feel extremely comfortable with those levels! I’m assuming you haven’t had any bad symptoms, right? Like no unexplained/easy bruising, bleeding, little red/purple dots on the skin called petechiae, or blood blisters in mouth? The only thing I would do in your case is continue monitoring the platelet levels. You can speak to your doctor about getting them done more often than once a year if that would help your peace of mind...maybe twice a year? I hope this helps, I’m only speaking to the experience I’ve had with ITP, which is having crashes with a multitude of symptoms and being unable to hold a safe amount of platelets (over 50K) without medicines!

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Is this for real? 3 years 10 months ago #67155

  • karenr
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  • Diagnosed in 2000, at 59, after being on moderately high doses of NSAIDs for arthritis. Splenectomy and rituxan both failed (2004). Did well on prednisone till summer 2018--then terrible reactions. Promacta since 11-19.
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I agree with Ecoclayton. Most of us would be delighted with your numbers. I was diagnosed when my platelets fell--abruptly--from above 144K to 15K.

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Adults With ITP
Newly Diagnosed & Frequently Asked Questions
Is this for real?

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