I’m a 25 year female. I was diagnosed June 5, I was noticing large bruising randomly and had the small little dots all over my body. I got blood work done and my levels were 1,000 per ML. If that’s the right terminology.
I was admitted to the hospital (June 5) after going to the ER and they ran another blood test to make sure they results were that low. All my other blood tests came back normal, the only thing off was my platelet count.
I received steroids, platelet transfusion (x2) and my levels went up to 26,000. Then the next day, they dropped to 10,000. I started receiving B12 shots in addition to my steroids, because they noticed I was B12 deficient. The next day, I got to 37,000 and was able to be released from the hospital. I was prescribed 70mg of prednisone daily.
A week later, June 14, I saw the doctor in outpatient and my levels went to 90,000! I received another B12 shot and the doctor said I could decrease my steroids to 50mg prednisone per day. 10 days later, I saw the doctor and my levels dropped to 36,000. He told me to increase to 60mg prednisone and wasn’t sure why they dropped. Does anyone think the drop from 70 to 50 was too sudden?
Next appointmet, my levels were stable basically. I think 40,000. He suggested we look at other treatment plans and the option I chose was Promacta. It’s being special ordered so I don’t have it yet and I’m still taking 60mg of prednisone. I’m not sure what mg of the Promacta I will be on. I need to do more research on spleen removal. Is there a thread of that on here?
I’m still trying to figure out what happened in my body to cause this to happen. I had to get a Hep A vaccine because I was going to South Africa for vacation. (Had to cancel because of my hospital stay). I also took the Typhoid vaccine (pill).
I also was on a cleanse during the month of May through a company called Arbonne. They focus on improving gut health. Which is def important with auto immune. But I’m wondering if I ingested a certain bacteria that didn’t work with my body. I had to exclude gluten, soy, dairy, vinegar, coffee, added sugar, alcohol. Just seems crazy with the timing... but the research I’ve been reading on gut health basically says to avoid gluten/added sugar so it’s weird that I was at 1,000 platelets while following this diet. I’m probably looking at it the wrong way but I want to find a doctor that is looking for WHY this happened.