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My 15-month-old diagnosed with ITP on March
- Angelito0130
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She has been super sleepy, and also sometimes have blood in her stool.
Anyone else with something similar!!! Please help
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- maria3132
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Welcome, though I'm sorry you are joining many of us who have been on the rollercoaster... you may want to check out the Parents/Children's forum. It sounds like your daughter responded to IVIG quickly, which is a good sign. The aseptic meningitis is of course not a good side effect, but does sometimes happen. Some measures can be taken to minimize this possible side effect, including 1) slowing down the infusion rate considerably, 2) prehydrating and premedicating with antihistamines, corticosteroids, or NSAIDs, 3) switching to different IVIG products (not all are the same, and the different preparations have different effects in different patients; if I recall correctly, the less sucralose, the less chance of adverse effects, 4) switching to SCIG from IVIG (this is rarely done but see www.bloodjournal.org/content/124/21/5012?sso-checked=true ).
I am not sure you need a bone marrow biopsy if her bloodwork only shows low platelets and no other abnormal results (or a few only slightly off, which most of us will have on any given day). What was the reason for the hematologist's suggestion for a bone marrow biopsy, and for the (seemingly random) deadline of June 4th?
Does she have any wet purpura, i.e. purple spots in her mouth?
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- Angelito0130
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She doesn't have wet purpura, but she has a few spots of petechiae on her face, belly, and legs even though her count is on 45 to 70 PLT. Like you said her count is slightly off, and she has atypical lymphocytes 8%. The doctor said that 80 percent of children with ITP go away around 3 months and 99% of atypical lymphocytes is nothing, I am terrified, if her counts still low by the next appointment on June 4th he suggested to do a bone marrow to rule out anything else.
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- maria3132
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Perhaps some of the other posters could chime in on the bone marrow biopsy issue.
The only thing you mention that might warrant further investigation are the bloody stools. Have you mentioned those? How frequent are they? Could it be from abrasion, v. stomach or intestinal bleeding?
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- Angelito0130
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Yesterday we received one of the test results and IgA is low but negative celiac.
By any chance do you know what is that??
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- JJ
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