Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

How do you monitor your counts? 4 years 2 months ago #65953

  • sillyman
  • Offline
  • Posts: 23
  • Thank you received: 3
Are there any portable machine to check platelets level at home?

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 4 years 2 months ago #65955

  • b2h
  • Offline
  • Posts: 148
  • Thank you received: 47
Not that I know of. I wish we could treat ITP in a way similar to diabetes. Prick finger for platelet count, inject Nplate or take pill or... Though now I am accustomed to going to the lab and infusion center and having my doctor oversee it all, so I don't dislike it the way I used to.
Still, I think a home platelet test would be a good invention.

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 4 years 2 months ago #65956

  • MelA
  • Offline
  • Posts: 1105
  • Karma: 2
  • Thank you received: 367
No machines like you are thinking of.

Finger slices (I do not call them finger pricks as they aren't pricks, they are a barbaric slice) are not good for a platelet count, squeezing the blood out can give a false count.
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 4 years 2 months ago #65957

  • b2h
  • Offline
  • Posts: 148
  • Thank you received: 47
Sounds like you have experience. :( Good thoughts. For some reason I thought it was a prick, similar to a blood draw with a needle. There are lancet free monitors and some people have done bio-hacking, but...
Anyway, good info. Thanks

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 4 years 2 months ago #65959

  • MelA
  • Offline
  • Posts: 1105
  • Karma: 2
  • Thank you received: 367
My son was given a finger "prick" when he was about 12 - had I known I would not have let them do it but I didn't know it was a slice until they gave it to him and then later I had one myself and it hurt BAD!! When my hematologist's office sent out a note they were going to finger "pricks" I never ever let them do it to me!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 4 years 2 months ago #65966

  • b2h
  • Offline
  • Posts: 148
  • Thank you received: 47
Wow. I have more empathy for diabetics now.

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 4 years 2 months ago #66072

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2372
Most just go by symptoms. If you feel like you need to know numbers, ask for a CBC.

Please Log in or Create an account to join the conversation.

How do you monitor your counts? 3 years 11 months ago #66873

  • ecoclayton
  • Offline
  • Diagnosed with ITP 5/23/19
  • Posts: 72
  • Thank you received: 11
A home test sure would be nice. It takes at least an hour each visit just going in 2 times a week for my CBC. I do realize that once we have this under control I won't be getting CBC's so often.

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member BadgeTHSNA logo