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Ann wrote: The latest guidelines are here
bloodjournal.hematologylibrary.org/content/115/2/168.full
See the possible treatments and it's then a matter of choice decided between you and your haematologist.
IVIG didn't work for me either. Steroids did but it did take a few weeks to get a decent count. Personally I wouldn't panic at a count of 18 and would just continue with the steroids and see what happens. Just make sure you have a doctor who is experienced with treating ITP and you'll be fine.
By the way, white cell count goes up when on steroids so don't worry about it being a bit high.
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Sandi wrote: There are other treatment options. IVIG is known to be temporary...you could call it a band-aid. If the steroids don't kick in, and they should work pretty quickly if you are going to respond at all, you should ask to taper off and try something else.
Most of us were healthy prior to being diagnosed with ITP. It can be triggered by many things...an illness, a medication, a supplement, an exposure to a toxin, you may never know. Anyway, you still are healthy, you just have below normal platelets.
As Ann said, hopefully you have a doctor who is informed with ITP. If you find that he isn't, try to find another doctor.
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Sandi wrote: As far as I'm concerned, anything out of the ordinary can jump start the immune system and trigger ITP. SO yes, a bite could have been the trigger, although you will never know for sure.
My thinking, after years of researching, is that most people are predisposed to ITP and if it wouldn't have happened now, it would have happened eventually anyway.
Many doctors are aware of ITP, but believe me, many are not up to date on the most current research.
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Sandi wrote: I hope so, but the ITP success rate after treating H. Pylori isn't very high. Good luck and let us know!
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