If it's any consolation to you, I am also in my 30's (33), and live a healthy, active lifestyle - run a lot, lift a couple time a week, commute everywhere on my bike, I love half-marathons.
So to suddenly be stricken with this disorder is a real bitch. I spent a week in a hospital just the week before last, wondering why they were keeping me hostage! I felt fine!
Now I am on Prednisone, it's working out OK so far, and am back to running trails and riding my bike and I even went backcountry skiing last week. What I have learned is that I am more prone to hypochondria when I stay at home, than I am when I am out being active.
So don't let this get you down - just accept you have it, accept that it sucks, but think about the good this can bring to your life: appreciating it more for one, and staying healthy.
My first run after the hospital was pathetic! That was on Monday. I was huffing and puffing and my legs were weak. All week I continued to ride my bike and today I ran again alas still a little slower than before the hospital, but a million times stronger than just Monday.
So my advice is to just get out there, stay active, and bounce back.
It's nice to run into another person with ITP who is an active adult male in his 30's, it seems this really hits women more than men.
Isnt the internet amazing!!! i suppose that in times gone by people would not have had a clue that there were so many others (and potentially worse off) with the same 'condition' than you could possibly think.
Like you i have always been a pretty active person - my wife has been calling ITP 'lazyitis' as it really knocks the stuffing out of you. I do find that if i keep going i feel better, its getting up and at em that takes the most work.
Glad to hear your feeling stronger - i have a pretty new bike in my basement that i have been making excuses for not riding, reading your post made me go for a quick blast and i now feel a lot better in my headspace!!.
I can only dream about back country skiing, although there is always next season in europe
The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.
Platelet Disorder Support Association 8751 Brecksville Road, Suite 150, Cleveland, Ohio 44141 Phone: 1-87-PLATELET | 877-528-3538 (toll free) | or 440-746-9003 E-mail: firstname.lastname@example.org