Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Going with the flow 11 years 10 months ago #2097

  • Julianna
  • Offline
  • Posts: 24
  • Thank you received: 0
Hi all. Sorry to those who I couldn't meet on chat last night. The computer was out of use! And I'm sorry too that I'm going to have to leave you for a bit... I've just got too much going on, and believe it or not, my health is the last thing I'm worried about.

It's been 4 weeks on Friday since my first Rituximab treatment and I see the Hematologist for a blood count. And if hasn't changed much we do Ritux again (probably next week). Down to 5mg of Pred. Last count was 28... so that's promising, I think.

Take care all, with everything that life brings your way! And I may return at a later time. At the moment............ I'll just go with the flow....

xx Jules ;)

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 10 months ago #2098

  • server
  • Offline
  • newcreationchangingdaily
  • Posts: 653
  • Thank you received: 16
It's ok Jules. We'll still be here when you can make it back! Praying all is well and look forward to hearing from you soon.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 10 months ago #2100

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2367
I understand how that can be. Come back when you can.

Please Log in or Create an account to join the conversation.

Re:Going with the flow ~ new diagnosis 11 years 9 months ago #2558

  • Julianna
  • Offline
  • Posts: 24
  • Thank you received: 0
I've come back to say goodbye my friends... thanks so much for your support this far in my journey. I now have a new diagnosis of MDS - myelodysplasia. Still getting used to the idea, and learning more about it. See Bone-Marrow Transplant Doctor in a month to talk about the future.

Just so glad to have a final diagnosis. Seems to be cause my my treatment for Aplastic Anemia over 10 years ago. But like I said before... I've decided to just go with the flow. Take care all...

I wish you a platelet filled Easter!

Jules

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 9 months ago #2563

  • NatalieM
  • Offline
  • Posts: 191
  • Thank you received: 12
Julianna,

I am so so sorry to hear this news. I'm glad you found relief in finally knowing your diagnosis. Please keep us updated on your progress. I am praying for you and yours. Remain optimistic and take care. I wish you nothing but the absolute best.

Natalie
*Here's to high platelets!*

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 9 months ago #2565

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2367
Julianna:

There is a lot of hope. I know someone that had MDS and after treatment, she is doing well. She is 80 years old.

Good luck to you and we'd still like to know how you're doing, ITP or not.

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 9 months ago #2567

  • server
  • Offline
  • newcreationchangingdaily
  • Posts: 653
  • Thank you received: 16
Julianna, when all is said and done, it's gonna be alright. Please do let us know how your doing.
My flesh and my heart may fail, but God is the strength of my heart and my portion forever.
Psalm 73:26
Blessings,
gretchen

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 9 months ago #2579

  • Lorie85
  • Offline
  • Posts: 127
  • Thank you received: 0
Julianna, I'll definitely be praying for you.

Please Log in or Create an account to join the conversation.

Re:Going with the flow 11 years 9 months ago #2589

  • tortie
  • Offline
  • Posts: 105
  • Thank you received: 0
Julianna, you'll be in my thoughts, we're still here whenever you want to talk.

Please Log in or Create an account to join the conversation.

  • Page:
  • 1

Charity NavigatorGuideStar Seal NORD Member Badge 2021THSNA logo