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Adults With ITP
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colonoscopy
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colonoscopy 13 years 2 weeks ago #12

  • cindyduncan
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my platelets run 70 to 80 range and doc ordered a colonoscopy and the gut doc wouldnt do it so my hema doc talked to other doc and now i on same day of test gotta get some platelets anyone had this happen

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Re:colonoscopy 13 years 2 weeks ago #19

  • eklein
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My doctor would do it at that count, maybe you could call some other doctors and see. Mine wanted to do it in a hospital setting if my counts were low (but they weren't, so I did the regular office one).
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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Re:colonoscopy 13 years 2 weeks ago #30

  • tigereyes
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It all depends on what the doctor is comfortable with. I had a count of 80, the GI doctor said that if there were any polups or anything he needed to remove he wouldnt feel comfortable doing it with a count of 80. They had platelets on standby. What about possibly getting some IVIG to get your counts up prior to the colonoscopy? I was monitored for bleeding for about 8 hrs prior to them letting me go home.
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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Re:colonoscopy 13 years 2 weeks ago #32

  • annette
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My GI doctor said he would do it if my count were over 50K. The pred I took before the procedure actually pushed it over 100K.

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Re:colonoscopy 13 years 2 weeks ago #34

  • Kim
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  • Diagnosed with ITP in 1983, lupus in 1990, APS in 2001, vasculitis in 2006. Current platelet count 148. In 2007 I had a stem cell transplant for autoimmune disease and currently ITP and APS remission, with a reduction in lupus activity.
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It is interesting to see what other doctors do and won't do based on platelet count. I've had a colonoscopy done with counts as low as 20k, even when there was thought that I had GI bleeds due to my ITP.

I had been suffering from anemia, which was thought to be from chronic GI bleeds, a problem due to ITP. My doctor wanted to make sure I had no polyps that could contribute to GI bleeding, we felt the risk of the scope was worth it and the GI doctor would have been able to remove and cauterize a polyp that was causing the problem bleeding.

I was having major problems with anemia, which were requiring iron and blood transfusions. I also was having stomach upset and other GI problems, which I was hoping could be identified and resolved with the scope.

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Re:colonoscopy 13 years 2 weeks ago #37

  • CindyL
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I don't know what my count was when I had my colonoscopy. That was a couple of years ago, however.




Have a great day.

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Re:colonoscopy 13 years 2 weeks ago #38

  • CindyL
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I don't know what my count was when I had my colonoscopy. That was a couple of years ago, however.




Have a great day.

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Re:colonoscopy 13 years 2 weeks ago #39

  • CindyL
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I don't know what my count was when I had my colonoscopy. That was a couple of years ago, however.




Have a great day.

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Re:colonoscopy 13 years 2 weeks ago #44

  • Caroline109
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My doctor wanted a count of 50. I had no trouble with that.
Caroline
Diagnosed with ITP 9/14/1980, the day oldest son was born, & it continued through the births of my other 2 sons and continues now! No treatments until March 2011 when I had a TKR and my count decided to plunge. Sons now almost 25-30. My spleen's still with me.
PKR 09/2008
TKR 04/2010
TKR...

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Re:colonoscopy 13 years 1 week ago #212

  • sailorsocks67
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Mine was done with counts at 60,000.Removed a couple of polyps. Doc had no worries. But that was 10 years ago.Hope it helps.

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Re:colonoscopy 13 years 1 week ago #270

  • jk4901
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I have the same problem but with a PLT 56 (one thing that seems to be true is that the error in finding the PLT could be in the ball park of 10 or more). A conversation is going on between my Gastroenterologist and hematologist with my as the go-between via email. I have yet to hear from my hematologist as to how he will increase my PLT for the operation. I think there are some medications that can be used like: corticosteroids.

www.redorbit.com/news/health/1606504/gsk_reports_promactar_eltrombopag_significantly_increased_platelet_counts_and_reduced/index.html

I had a hydrocelectomy and didn't have any problems with bleeding although that is probably not as serious as having a polyp removed.

I'll keep you informed about the ongoing discussions between the various physicians.

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Re:colonoscopy 12 years 11 months ago #887

  • cindyduncan
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nothing up in there :)

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Re:colonoscopy 12 years 11 months ago #923

  • barrelgal
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good to hear! I had one to check for possible causes of my anemia with counts at 40. My GI has the office next door to my hema though so when she had questions that I couldn't answer we literally walked down the hall and asked my hema together. She was completely comfortable after that.

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colonoscopy

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