Hi, please forgive me if this is a bit long but I want to give you the full story as I'm desperate for advice.
I found out I had itp during a routine blood test in my first pregnancy in 2009. During the pregnancy my levels were around the 40 Mark and I was told there was nothing to worry about. I went in to labour and everything was going well. As I got to the final stages though.. Pushing ( sorry if too much info ) my baby's heartbeat dropped. In the end they performed an emergency c section. I was put to sleep as they didn want to risk an epidural. Anyway, my baby girl was born an they took her blood straight away to be tested. Within an hr sh was rushed in to special care. Her levels were at 1. She was so poorly.. They gave her brain scan after brain scan checking for bleeding on the brain. Amazingly, she came through fine. Our doctors told us it was a miracle an that they didn expect her to survive. After 6 months of infusions she was healthy and had started producing her own antibodies.
Since I gave birth things just went down hill for me. My levels were falling through the floor. I tried every treatment and nothing worked. The only thing that worked temp was ivig. The infusions were lasting 9 days then my levels were falling back down to 1.. I was then bleeding very heavely from numerous places so they decided to admit me every 7 days for 3 days worth of ivig to prevent my levels going too low. In the end I opted for a spleenectomy in September last year. I couldn't carry on the way I was going.. Thankfully, the seems to hav worked. My levels have been around the 100-150 Mark.
As a result of everything we have been through, we were advised against any further pregnancies due to the seriousness of what I've been through. We agreed as I never wanted to go through nearly losing a baby again.
I've been on the pill since this but have now just found out I'm 4wks pregnant. I'm devistated. The thought of going through this all again.
What are the chances the itp will rear it's ugly head due to the pregnancy? I know how lucky we were last time and I knoyou only get so many miracles in your life. The thought of losing my baby is tearing me apart and I need to ge all facts before we make any decisions . Please help