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Not to sure! 12 years 2 months ago #13160

  • BMercado
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Hello everyone, Im a lil scared and would love some advise. I have had itp for 4 years have a healthy toddler. Got diagnosed with ITP when he was 1 year and a half.Pregnacy went great NO sign of ITP. Healthy pregnacy natural birth and now wanting another baby. Not to sure what to expect. I have been an many treatments and medications. Steroids, IVIGs had an allergic reation to the last one havent had another IVIG since, that would be 8 months ago. Now not to sure anyone please help with any advice, would be greatly appreciated.

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Re: Not to sure! 12 years 2 months ago #13888

  • Crystal361
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Where are your levels sitting?

I found out about my ITP when I became pregnant with my son. I have only ever been treated with IVIG but if you had an allergic reaction to it I wouldn't suggest trying it again. Changes are you will have a worse reaction to it if you have it again.

My count with my first pregnancy hovered around 45 and with this pregnancy around 28. I don't have any symptoms though. I am fine sitting at this level the only concern would be delivery.

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Re: Not to sure! 12 years 2 months ago #13893

  • tigereyes
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I did rituxian November 2009. I found out I was pregnant in July 2010. Currenlty 38 weeks. My counts have been 30-40 throughout. With a slight bump up to 55. I usually respond really well to IVIG however because of the pregnancy I havent responded very well. I havent had to take steriods until this week as I am being induced tomorrow. You can have a safe vaginal birth with no epidural. So if you want to get pregnant talk to your doctors see what they advise. I am responding to steriods just high doses. So Im hoping for a safe delivery and that I can manage without pain meds.
Jennifer

Mother of 2 boys
Last Rituxan 12/09/09--3rd time around with not much sucess
Winrho-09/25/09 Didnt work.
IVIG--Countless times

Latest counts 8 4/2013-just started Promatca
Diag. 9/2006

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Re: Not to sure! 12 years 2 months ago #13909

  • cloyd915
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My counts have been 3,000-149,000 (as of 3-28-11 I was 38,000) since Feb. I have been on high doses of Prednisone and IVIg weekly since with what I consider little improvement. I am followed closely and feel confident in my doctors. I would advise you to talk to your OB and PCP before starting your baby dance! Good luck!
Diagnosed with ITP 2/7/11
Treating regularly with IVIg
Currently in the low 100's

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