Be a part of the ITP community and stay informed.
Login to your account or REGISTER.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
Forgot your password? Forgot your username? Create an account
Forum
Other Platelet Disorders
Antiphospholipid Syndrome
Low Platelets - Next Steps
Antiphospholipid Syndrome
  • Page:
  • 1
  • 2

TOPIC:

Low Platelets - Next Steps 7 years 1 month ago #44482

  • BadBlood
  • Offline
  • Posts: 22
  • Thank you received: 1
Just a quick update.

Started Rituxan treatment earlier in the week with no serious issues. Platelets tested prior to treatment continue to look good around 70k so they have finally started a very slow taper off prednisone after 7 weeks at 60 mg. I'm thankful steroids work so well for me, but can't wait to get dosage way down or get off completely.

Sandi - I believe the changes are being made due to requirements of PPACA. Good luck with your insurance coverage next year, I know it can be really tough to find a good plan.

Uchallas - I believe Promacta is one of the drugs my hemo said we will not use as it can produce too many platelets which greatly increases risk of clots with APS. But I'm no expert and glad it worked for your wife :)

Please Log in or Create an account to join the conversation.

Low Platelets - Next Steps 7 years 1 month ago #44489

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2366
That's good! I'm glad things are going better for you, I hope it continues. Thanks for the update!
The following user(s) said Thank You: BadBlood

Please Log in or Create an account to join the conversation.

Low Platelets - Next Steps 6 years 9 months ago #46387

  • BadBlood
  • Offline
  • Posts: 22
  • Thank you received: 1
Hello All,

Sorry for the delay in updates, things have been challenging to say the least. I'll provide a more detailed update in a few days, a lot has happened, but just wanted to say I'm still around.

Mike

Please Log in or Create an account to join the conversation.

Low Platelets - Next Steps 6 years 9 months ago #46392

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2366
Mike - thanks for checking in. I've been worried about you. Sent you an e-mail or two. I hope you're doing ok.

Please Log in or Create an account to join the conversation.

Low Platelets - Next Steps 6 years 7 months ago #48059

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2366
Hey Mike. I have not forgotten about you. I hope you are okay.

Please Log in or Create an account to join the conversation.
  • Page:
  • 1
  • 2
Forum
Other Platelet Disorders
Antiphospholipid Syndrome
Low Platelets - Next Steps

Charity NavigatorGuideStar Seal NORD Member Badge 2021THSNA logo