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Other Platelet Disorders
Antiphospholipid Syndrome
Low Platelets - Next Steps
Antiphospholipid Syndrome
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Low Platelets - Next Steps 8 years 3 months ago #44482

  • BadBlood
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  • Posts: 22
  • Thank you received: 1
Just a quick update.

Started Rituxan treatment earlier in the week with no serious issues. Platelets tested prior to treatment continue to look good around 70k so they have finally started a very slow taper off prednisone after 7 weeks at 60 mg. I'm thankful steroids work so well for me, but can't wait to get dosage way down or get off completely.

Sandi - I believe the changes are being made due to requirements of PPACA. Good luck with your insurance coverage next year, I know it can be really tough to find a good plan.

Uchallas - I believe Promacta is one of the drugs my hemo said we will not use as it can produce too many platelets which greatly increases risk of clots with APS. But I'm no expert and glad it worked for your wife :)

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Low Platelets - Next Steps 8 years 3 months ago #44489

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2371
That's good! I'm glad things are going better for you, I hope it continues. Thanks for the update!
The following user(s) said Thank You: BadBlood

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Low Platelets - Next Steps 7 years 11 months ago #46387

  • BadBlood
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Hello All,

Sorry for the delay in updates, things have been challenging to say the least. I'll provide a more detailed update in a few days, a lot has happened, but just wanted to say I'm still around.

Mike

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Low Platelets - Next Steps 7 years 11 months ago #46392

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2371
Mike - thanks for checking in. I've been worried about you. Sent you an e-mail or two. I hope you're doing ok.

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Low Platelets - Next Steps 7 years 9 months ago #48059

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2371
Hey Mike. I have not forgotten about you. I hope you are okay.

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Forum
Other Platelet Disorders
Antiphospholipid Syndrome
Low Platelets - Next Steps

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