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Other Platelet Disorders
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TOPIC: New lupus thing for me, "pterygium"

New lupus thing for me, "pterygium" 3 years 10 months ago #55740

  • eklein
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Hi lupus people,
So I have a new lupus thing, it's more stupid than awful considering the big picture. Some of my nails, toes and fingers, are messed up. At first a terrible dermatologist told me I had psoriasis but then I saw a smart one who figured out it was a lupus related thing called pterygium inversum unguis. Basically the nail is adhering to the skin underneath it which deforms the nail and irritates the skin above and below the nail. I had some fingernail splitting and was walking around with duct tape on my nails to keep them from catching on stuff. Lucky I'm not too vain.

But platelets are still good!
:)
Erica
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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New lupus thing for me, "pterygium" 3 years 10 months ago #55742

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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  • Karma: 11
  • Thank you received: 2350
That sounds awful. Can it be treated?

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New lupus thing for me, "pterygium" 3 years 10 months ago #55743

  • eklein
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  • Posts: 1353
  • Thank you received: 167
Not really. The derm recommended this over the counter stuff, DermaNail, that helps the nail be less breakable. I think it is helping but slow. There are pretty serious treatments that might or might not help and aren't worth it. Knowing what it is finally and relief it isn't psoriasis and isn't serious, I'm not that bothered. One toe has been annoying.
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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New lupus thing for me, "pterygium" 3 years 10 months ago #55750

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2350
What if you had the nail removed and soaked it daily?

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New lupus thing for me, "pterygium" 3 years 10 months ago #55764

  • eklein
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  • Posts: 1353
  • Thank you received: 167
Then it might have the same problem when it grows back or it might not.
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

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New lupus thing for me, "pterygium" 3 years 10 months ago #55766

  • Sandy Too
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poor you...what we must endure...vanity is useless, real beauty totally comes form someplace else...it think the same place as endurance. Sandy Too

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New lupus thing for me, "pterygium" 3 years 10 months ago #55768

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2350
Erica - You never know. I've had a toe nail removed and it actually felt better once it was gone. Different reason, I know, but couldn't hurt.

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New lupus thing for me, "pterygium" 3 years 10 months ago #55769

  • eklein
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  • Posts: 1353
  • Thank you received: 167
Well the thing is the nail thing doesn't really hurt. My toe is annoying now and then so I put a bandaid on it and it's fine. My fingernails are only annoying if they split and I'm not careful and they catch on something. And nobody's face should be close enough to my fingernails or toenails to notice they are weird. The one person whose face might be near doesn't care about it at all.

What IS bothering me is some base of thumb arthritis in my right hand. I am pretty sure it is regular osteoarthritis and not lupus arthritis. I need to find some kind of brace or something to wear on my hand to rest it. That's what's hurting.
And she was!
Diagnosed May 2005, lowest count 8K.
4/22/08: 43K (2nd Rituxan)
10/01/09: 246K, 1/8/10: 111K, 5/21/10: 233K
Latest count: 7/27/2015: 194K

Please Log in or Create an account to join the conversation.

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