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New to the group 1 month 2 weeks ago #68547

  • MandyR35
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My son who is almost 14, was diagnosed with ITP almost 2 years ago. We have tried all the treatments, the only ones left aren’t even approved by the FDA. It only brings his platelets up to maybe 30,000 for 2 weeks, then drop again to 2,000 or 4,000. We are considering removing his spleen, but I’m scared that won’t help either, and he will be without his spleen on top of everything else. I would love to hear from people that have or haven’t had their spleen removed. Did it help, or did it not help?

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New to the group 1 month 2 weeks ago #68561

  • MelA
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Mandy I was diagnosed in 1989 and still have my spleen - luckily prednisone did work for me, but my counts are still lower than the normal range - so I really can't help you, sorry.

Isn't Vanderbilt University Medical Center in Nashville one of the top hospitals in the country? Wouldn't they have a good hematology department, maybe he could see someone there if it is close to you.

If I were you I'd post your question in the adult section - you will get a lot of responses there I'm sure! Also they might like to know what treatments have failed your son.

Hope all goes well for him!!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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New to the group 1 month 1 week ago #68566

  • MandyR35
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Thank you! I’ll try that.

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