Platelet Disorder Support Association

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I'm so tired of this.

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8 years 7 months ago #53883 by ALXNDR
I'm so tired of this. was created by ALXNDR
So yesterday I decided to play the box drum on my youth worship team. I got home and found out I had gotten bruises from practice. I had finally found a spot I was comfortable in, and once again, ITP ruined it for me. Im absolutely tired of having to deal with this. Its been a year now, and it's gone on long enough! Why can't this be over!?!?

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #53885 by Sandi
Replied by Sandi on topic I'm so tired of this.
Have you treated? How are your counts and what have you tried?

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8 years 7 months ago #53886 by ALXNDR
Replied by ALXNDR on topic I'm so tired of this.
Ive done 2 treatments of prednisone, and my platelets are 31,000 also, UPDATE: I was just hitting the drum wrong, but still. Im soooo tired of ITP

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #53887 by Sandi
Replied by Sandi on topic I'm so tired of this.
31,000 isn't too bad. It's a safe count. However, there are other treatment options if you really want higher counts.

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8 years 7 months ago #54210 by ALXNDR
Replied by ALXNDR on topic I'm so tired of this.
Well, my doctor doesnt want to pump me full of meds, and my platelets are doing an odd 2 steps forward 1 step back thing. So we are kinda just watching. If they drop below 10, then I get the IVG.

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  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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8 years 7 months ago #54212 by Sandi
Replied by Sandi on topic I'm so tired of this.
Good for your doctor! I wish more doctors felt that way. After taking quite a few medications over the years for various things, including ITP, I can honestly say that the drugs can do more harm than the illness does. You're too young for long-term side effects that can destroy your health. Manage ITP with the least possible amount of medications.
The following user(s) said Thank You: ALXNDR

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.


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