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TOPIC: I'm so tired of this.

I'm so tired of this. 4 years 3 months ago #53883

  • ALXNDR
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  • Posts: 8
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So yesterday I decided to play the box drum on my youth worship team. I got home and found out I had gotten bruises from practice. I had finally found a spot I was comfortable in, and once again, ITP ruined it for me. Im absolutely tired of having to deal with this. Its been a year now, and it's gone on long enough! Why can't this be over!?!?

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I'm so tired of this. 4 years 3 months ago #53885

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2350
Have you treated? How are your counts and what have you tried?

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I'm so tired of this. 4 years 3 months ago #53886

  • ALXNDR
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Ive done 2 treatments of prednisone, and my platelets are 31,000 also, UPDATE: I was just hitting the drum wrong, but still. Im soooo tired of ITP

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I'm so tired of this. 4 years 3 months ago #53887

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2350
31,000 isn't too bad. It's a safe count. However, there are other treatment options if you really want higher counts.

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I'm so tired of this. 4 years 3 months ago #54210

  • ALXNDR
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Well, my doctor doesnt want to pump me full of meds, and my platelets are doing an odd 2 steps forward 1 step back thing. So we are kinda just watching. If they drop below 10, then I get the IVG.

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I'm so tired of this. 4 years 3 months ago #54212

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12435
  • Karma: 11
  • Thank you received: 2350
Good for your doctor! I wish more doctors felt that way. After taking quite a few medications over the years for various things, including ITP, I can honestly say that the drugs can do more harm than the illness does. You're too young for long-term side effects that can destroy your health. Manage ITP with the least possible amount of medications.
The following user(s) said Thank You: ALXNDR

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