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TOPIC: splenectomy questions

splenectomy questions 6 years 2 months ago #37744

  • Sg24
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I have had itp for going on 4 years we have tried n-plate injections for 3 years but they stopped working the way they should they now want to remove my spleen. I do not agree with what the doctor wants to do. Has anyone refused?

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splenectomy questions 6 years 2 months ago #37756

  • Rob16
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I don't know about teens, but plenty of adults on this site have refused splenectomy, as well as a wide variety of other extreme treatments. Read everything you can on this website, so that you can demonstrate the strength of your convictions. Make sure you have a second opinion from a hematologist who specializes in ITP. Splenectomy is forever!

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splenectomy questions 6 years 2 months ago #37765

  • Sg24
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thanks for the information and if its not to much to ask what treatments have worked for you

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splenectomy questions 6 years 2 months ago #37766

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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What are your counts and what treatments have you tried?

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splenectomy questions 6 years 2 months ago #37771

  • Sg24
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steroids and n-plate injections and they stay around the 50's

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splenectomy questions 6 years 2 months ago #37789

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Counts in the 50's are perfect while using N-Plate. The drug isn't meant to induce normal counts and if it does, the dose should be lowered.

If your goal is remission, there are other options to try, such as Rituxan.

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splenectomy questions 6 years 2 months ago #37807

  • Sg24
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Rituxan is what we are getting ready to start im hoping it works

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splenectomy questions 6 years 2 months ago #37809

  • Sandi
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  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
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Good luck! I hope it works for you too.

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