Beads of Courage for Hematology

Beads of Courage for Hematology 10 years 6 months ago #9865

tacmom
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Posts: 418
Thank you received: 1

Just wanted to let you know that if your hospital is doing this for their cancer patients, they are opening this up for hematology effective Dec. 1st!!

GREAT program...take advantage of it if your hospital has it! It is one of the most cherished things I have of Caitlin's journey with ITP!

Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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Re:Beads of Courage for Hematology 10 years 6 months ago #9917

jaycharness Offline Posts: 56 Thank you received: 1	My daughter was the first Hematology patient at Children's Denver to be included in this program a couple years ago. She is up to (3) full strands of beads (which is 6 years worth of ITP). It is an amazing program where kids get to actually visually see the treatments, blood draws and Dr.'s appointments that she has been through. I would highly recommend it to anyone!
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Re: Beads of Courage for Hematology 10 years 1 month ago #14890

tacmom
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Posts: 418
Thank you received: 1

Hope this works...here is a pic of Caitlin at a recent competition with her beads. She doesn't have a whole lot because we don't get them for every blood draw. Plus she just started this last year.

Attachment Caitlin BOC.JPG not found

Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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Re: Beads of Courage for Hematology 9 years 4 months ago #21560

mparshall Offline Posts: 20 Thank you received: 0	I would love to do this for my son but his hospital doesn't participate in the program...yet. Will they provide the beads for individual children?
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Re: Beads of Courage for Hematology 9 years 4 months ago #21614

jkfrye1982 Offline Posts: 17 Thank you received: 0	My daughter just got her beads on Thursday! She is so excited about them. I guess if gives her something to look forward to, despite getting poked!
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Re: Beads of Courage for Hematology 9 years 4 months ago #21650

jlollman Offline Posts: 34 Thank you received: 1	They have a " beads from a distance program" for kiddos not in participating hospital area. We have been doing the beads and love the program! Mom to 7yr old Samuel with Chronic ITP. Diagnosed age 3
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Re: Beads of Courage for Hematology 9 years 4 months ago #21672

mparshall Offline Posts: 20 Thank you received: 0	Thanks! I sent them an email and we are getting him started as we speak. I am super excited about it!
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Re: Beads of Courage for Hematology 8 years 3 weeks ago #32946

Radioflyer02 Offline Posts: 7 Thank you received: 0	How so you sign up for this? My 4 year old daughter is terrified of her blood draws and it is really hard to get her to calm down.
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