Hello! My 10 year old son was diagnosed with ITP 3 months ago when we noticed strange dark bruises on his body. He has had 3 WinRho treatments which only held his platelets for 10-12 days before being admitted again. He has had 2 IVIG treatments which have lasted longer than the WinRho. He had his latest IVIG yesterday and the dr wants to put him on CellCept since his levels are not staying up for long. Has anyone else or anyones kids been on CellCept? I see it is used for anti-rejection for transplants so the possible side effects make a little nervous! Any info would be greatly appreciated!!!
I am thinking the same thing!! He gets brusises with hematomas, petechia, very pale...he is a very active boy who plays every sport so when his platelets are low-he is miserable because he can't play sports!! He has had a bone marrow biopsy and numerous other tests-thankfully everything is coming back negative but it is so frustrating!!
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