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nplate

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15 years 11 months ago #713 by Alissas mom
nplate was created by Alissas mom
Hi Pauline,

I was wondering if your doctor ever mentioned whether Caitlin could try nplate again in the future? I know that with a spleenectomy Nplate may not work as well.

I think about you guys all the time. Hoping you the best,

Debbie (Alissa dx 2003)

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15 years 11 months ago #802 by tacmom
Replied by tacmom on topic Re:nplate
Debbie- I don't really know if Nplate will ever be an option for her. There is a study going on that is following adults on nplate who already have reticulin in their bone marrow. This study is supposed to follow them for 3 years and if it shows that reticulin is hindering with the bone marrow's ability to make platelets or the other cells necessary for survival, then they will know not to allow people showing evidence of reticulin stay on the drug. Caitlin is currentlydoing tests for lupus so based on these results will tell us the next step for Caitlin. I don't think we will be doing splenectomy as our next step.
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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Platelet Disorder Support Association

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The Platelet Disorder Support Association does not provide medical advice or endorse any medication, vitamins or herbs. The information contained herein is not intended nor implied to be a substitute for professional medical advice and is provided for educational purposes only. Always seek the advice of your physician or other qualified healthcare provider before starting any new treatment, discontinuing an existing treatment and to discuss any questions you may have regarding your unique medical condition.