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Timothy bleeding symptoms

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14 years 10 months ago #602 by lucidawn
Timothy bleeding symptoms was created by lucidawn
Well, I'm sure he's bottomed out again. He's got petechiae from laying on his arm, and blood blisters in his mouth, and has a very mild nose bleed yesterday. Not sure what they will decide tomorrow, except that they will probably up the NPlate does.

Also, why don't I get email notification anymore from this list. I like that option cause it helps to not have to wade through the list every time.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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14 years 10 months ago #603 by dots
Replied by dots on topic Re:Timothy bleeding symptoms
Oh, Donna. I'm so sorry. Thinking of you guys.

As for the email notification -- when you reply, look at the box that says "subscribe." There's a box to check if you want to be notified when there's a response. It should work once you check it. You need to do it for each topic you're following.

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14 years 9 months ago #626 by tacmom
Replied by tacmom on topic Re:Timothy bleeding symptoms
I'm sorry he is having so many bleeding symptoms. They might need to use either IVIG or prednisone to keep him from bleeding until his count is at a safe level. Caitlin increased her dose each week until she was at .3 mcg then stayed there for a couple of weeks. Same with .04. .05 kept her stable for a long time as well as .06 but then .07 didn't work at all which was the max dose for her weight.
Pauline-mom of Tiffany (age 14) and Caitlin (Chronic ITP, UCTD -age 13)

Diagnosed: 03/02/07
Current count (Feb 2011): 138
Current dose: 1 mcg/kg

Treatments tried: IVIG (doesnt work), Prednisone (sometimes works with high doses), Nplate (2 years on it-worked, but had to be taken off due to...

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  • Kim
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  • Diagnosed with ITP in 1983, lupus in 1990, APS in 2001, vasculitis in 2006. Current platelet count 148. In 2007 I had a stem cell transplant for autoimmune disease and currently ITP and APS remission, with a reduction in lupus activity.
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14 years 9 months ago #628 by Kim
Replied by Kim on topic Re:Timothy bleeding symptoms
sorry to hear he's dumped out and counts low. Hope he rebounds back up again.

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  • Angel85
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  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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14 years 9 months ago #638 by Angel85
Replied by Angel85 on topic Re:Timothy bleeding symptoms
Sorry to hear that, hope they go back up soon and the symptoms go away

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