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Dougie's School Trip

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14 years 10 months ago #551 by alisonp
Dougie's School Trip was created by alisonp
Well, despite all my panicking, Dougie came back unscathed - despite quad-biking, high ropes, assault courses, zip-wires, climbing walls, etc. His clothes might never recover from the mud, but he had a brilliant time and loved every minute. He even said the food was great, which has to be a first for a school residential trip! He was really tired all weekend - but then I think his dorm had spent the nights talking rather than sleeping!

He hasn't got any symptoms at all at the moment. Long may it last. Its lovely to be enjoying some worry free time.

Thanks to everyone who supported me during his recent dip. I am hoping that I will panic less if it happens again. I am still hating this roller-coaster thing!!!!

Ali :lol:

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  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
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14 years 10 months ago #557 by Angel85
Replied by Angel85 on topic Re: Dougie's School Trip
Thats fantastic that he had such a wonderful time and had no problems!! I'm happy for him that he was able to have an enjoyable time during his trip!

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14 years 10 months ago #567 by dbishop
Replied by dbishop on topic Re:Dougie's School Trip
I'm glad he had a good and safe time. Even better that he has no symptoms right now!!! When does he go for his next CBC

Deanna
Mommy to Devyn 3 years old

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14 years 10 months ago #568 by alisonp
Replied by alisonp on topic Re:Dougie's School Trip
Hi Deanna

Dougie is due back at the hospital next Monday - I'd forgotten that it was the half term holidays next week though, and Dougie and one of his brothers are supposed to be staying with their Grandma, so I might try and rearrange his appointment for the week after.

Dougie has been complaining about having a sore throat today - its really annoying that I am now noticing all these stupid little viruses the kids get that never used to bother me at all before, just because they seem to have an effect on platelets. He seems fine though, still no symptoms..... long may it last!

Hows Devyn doing? Still got lots of bruises? I hope that he is well and that you are not worrying about him too much - having this illness at his age must make you want to cover him in bubble wrap!

Ali :cheer:

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14 years 10 months ago #570 by lucidawn
Replied by lucidawn on topic Re:Dougie's School Trip
Hopefully the rollercoaster ride is over...I'm glad he had fun.
Donna Ingold
Mom to Kelly 22, Karen 21, Josiah 19 (Congenital Heart Defect, MS), Timothy 17 (Chronic Refractory ITP-dx 5/03, Asthma), Isaac 15(blind left eye).

Allergic and Refractive to WinRho
Shortlived small response to IVIg(a few days of 30k or less).
0-1k since September 2010
No response to...

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14 years 10 months ago #582 by xray001
Replied by xray001 on topic Re:Dougie's School Trip
Ali - I am so glad that Dougie had a good time on his trip - and that you can breathe a sigh of relief that he had a great time, and came back no worse for wear.

Michelle
Michelle - mom to Danica - age 13
Diagnosed 8-6-09
No response with Prednisone, WinRho or Rituximab.
over 60 IVIg infusions (every two weeks)
Three Decadron pulses - count was up while on the Decadron, and then fell as soon as it was stopped. SPLENECTOMY done 7-June-2011 Last count 594

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14 years 10 months ago #593 by ktonooka
Replied by ktonooka on topic Re:Dougie's School Trip
Hi Ali,
Was so glad Dougie had a wonderful, safe, and fun school trip, and even better for you with him having good numbers before he went. Hope it stays that way!

Karen
mom to Jordan

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14 years 10 months ago #601 by dbishop
Replied by dbishop on topic Re:Dougie's School Trip
It's funny that you mention the bubble wrap....i've said many times that if i could wrap him in bubble wrap or put him in a bubble then we'd be okay. LOL....it's very hard to let him be a 2 1/2year old but i know that i have to let him be a kid. Our family and friends have been a huge support and all know that he needs to be very careful when his counts are low. Even when they are high we still make sure because we never know what they are from day to day.


I hope that Dougie is still symptom free and that he stays that way....keep me posted on what his counts are at when he has his next CBC.

Deanna :)
Mommy to Devyn 3 years old

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