Remember Me     Forgot Login?   Sign up   •  Web site Help & Info

!!! DISCUSSION GROUP RULES !!!

1. You must be a registered website user in order to post and comment. Guests may read only.
2. Be kind and helpful, not rude and cynical.
3. Don't advertise or promote anything. You will be banned from the group.
4. Report problems to the moderators. THANK YOU!

Another near normal count for Wesley

More
14 years 2 months ago #510 by CathyWesleysMom
Another near normal count for Wesley was created by CathyWesleysMom
Last week we went for Wesley’s 6 month appointment with the Hematologist. His count was 127,000!!

For those of you who don't know us, Wesley was diagnosed in 2002 at the age of 2 and 1/2. He had platelet counts under 20,000 (often 6,000) for about 2 and 1/2 years. He’s had WinRho about 30 times, IVIG 3 times, and Solumedrol twice. We watched and waited, even at single digit counts, when treatments stopped working. He was labeled chronic, refractory and severe. Thankfully, with the exception of one bad nose bleed and a terrible trip to the ER, he has never been a bleeder. Around the time he started kindergarten, his counts started going up on their own. They bounced all over the place for another 3 years, but were often in the 40,000-60,000 range. He also started going up with certain illnesses (ear infections, strep, the flu etc.). A couple of years ago he started maintaining normal/near normal counts. He's been between 80,000 and 240,000.

We were always told by our hematologist that a majority of chronic kids (60-75%) would eventually achieve normal or at least near normal counts. That is what happened for us, and that is what I hope for all of you with chronic kids.

Cathy (Mom to Wesley 10 diagnosed 4/2002)

Please Log in or Create an account to join the conversation.

  • Angel85
  • Offline
  • I am 27 years old from Australia and I have T.A.R Syndrome. My email address is not showing on my profile for some reason so it is blossom_242@hotmail.com for anyone who wants to send me an email.
More
14 years 2 months ago #511 by Angel85
Replied by Angel85 on topic Re: Another near normal count for Wesley
Wow, that is wonderful news, 127,000 is a fantastic count.

Please Log in or Create an account to join the conversation.

More
14 years 2 weeks ago #2124 by vsessions
Replied by vsessions on topic Re:Another near normal count for Wesley
Thank you so much for posting this. It is really encouraging to here that even after a few years they can "grow out of it". I appreciate your time in posting this.

Please Log in or Create an account to join the conversation.

Moderators: jaycharness