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Parents of Children with ITP
General Discussion for Parents
Splenectomy
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Splenectomy 3 years 1 month ago #68160

  • Gkm1
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My sister was diagnosed with ITP early this year. She's 18.she has been on prednisone and cyclosporine. If she stops the drugs her platelets drops so fast. Haematologist is suggesting we do splenectomy. We aren't comfortable with it. Kindly seeking second opinion. Thank you

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Splenectomy 3 years 1 month ago #68169

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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I would not entertain a splenectomy at my age let alone at 18. There is absolutely no guarantee it will work and the op is not without risks. There are many more medical treatments to try. Has haemo mentioned Promacta?

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Splenectomy 3 years 1 month ago #68171

  • Gkm1
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Thanks for the opinion.
We haven't tried promacta.

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Splenectomy 3 years 1 month ago #68179

  • Gkm1
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Mrs bo4
Kindly would wish to discuss something via WhatsApp. Is it possible. My WhatsApp contact +254720259763.

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Splenectomy 3 years 1 month ago #68183

  • mrsb04
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  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
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I don't have whats app. Send me a private message. Should be on the top right if you are logged in.

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Splenectomy 3 years 1 month ago #68190

  • JJ
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Read the latest treatment guidelines to see what is available before splenectomy.

ashpublications.org/bloodadvances/article/3/22/3780/428877/Updated-international-consensus-report-on-the

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Splenectomy 3 years 1 month ago #68198

  • MelA
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Gkm what is your sister's platelet count?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Splenectomy 3 years 1 month ago #68212

  • Gkm1
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JJ many thanks

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Splenectomy 3 years 1 month ago #68213

  • Gkm1
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MelA my sister's current platelets is 130

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Splenectomy 3 years 1 month ago #68265

  • MelA
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That is a good count Gkm - hope it stays up there for her!
Since your sister is 18 years old why not post your questions etc in the adult section, the General ITP Discussion - you may get more responses there.

Keep us posted!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Splenectomy 3 years 1 month ago #68266

  • Gkm1
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MelA : Many thanks for the advice.

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Parents of Children with ITP
General Discussion for Parents
Splenectomy

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