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Parents of Children with ITP
General Discussion for Parents
Splenectomy
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Splenectomy 1 year 11 months ago #68160

  • Gkm1
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My sister was diagnosed with ITP early this year. She's 18.she has been on prednisone and cyclosporine. If she stops the drugs her platelets drops so fast. Haematologist is suggesting we do splenectomy. We aren't comfortable with it. Kindly seeking second opinion. Thank you

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Splenectomy 1 year 11 months ago #68169

  • mrsb04
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  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
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I would not entertain a splenectomy at my age let alone at 18. There is absolutely no guarantee it will work and the op is not without risks. There are many more medical treatments to try. Has haemo mentioned Promacta?

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Splenectomy 1 year 11 months ago #68171

  • Gkm1
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Thanks for the opinion.
We haven't tried promacta.

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Splenectomy 1 year 11 months ago #68179

  • Gkm1
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Mrs bo4
Kindly would wish to discuss something via WhatsApp. Is it possible. My WhatsApp contact +254720259763.

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Splenectomy 1 year 11 months ago #68183

  • mrsb04
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  • Diagnosis of ITP in 2014. Retired (Nov 2019) renal specialist nurse, 46 years on the NHS front line. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use
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I don't have whats app. Send me a private message. Should be on the top right if you are logged in.

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Splenectomy 1 year 11 months ago #68190

  • JJ
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Read the latest treatment guidelines to see what is available before splenectomy.

ashpublications.org/bloodadvances/article/3/22/3780/428877/Updated-international-consensus-report-on-the

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Splenectomy 1 year 11 months ago #68198

  • MelA
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Gkm what is your sister's platelet count?
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Splenectomy 1 year 11 months ago #68212

  • Gkm1
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JJ many thanks

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Splenectomy 1 year 11 months ago #68213

  • Gkm1
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MelA my sister's current platelets is 130

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Splenectomy 1 year 10 months ago #68265

  • MelA
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That is a good count Gkm - hope it stays up there for her!
Since your sister is 18 years old why not post your questions etc in the adult section, the General ITP Discussion - you may get more responses there.

Keep us posted!
"Instead of wasting your time worrying about symptoms, just get it checked out" -Nieca Goldberg, MD

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Splenectomy 1 year 10 months ago #68266

  • Gkm1
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MelA : Many thanks for the advice.

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Parents of Children with ITP
General Discussion for Parents
Splenectomy

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