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Oops, my confusion.Johnny wrote: Thx Sandi and Hal for your replies. Hal, Sweden btw, not Switzerland. Common mix up haha both great places I agree!
Oh my, that sounds like an unusually high dose of steroids.... I believe her does was 60 mg per day. Her weight is 20 kg. It was a 3 day thing.
I haven't come up with anything substantive on ITP triggers - yet. Right, it is very reasonable to assume ITP was caused by the MMR shot. Sandi knows quite a bit more than I on vaccines and related.... Can I with your table come up with a possible reason for what triggered her ITP? I'm right now fairly certain that the MMR shot + that seasonal Flu ... triggered the ITP. I understand that vaccines actually stay in the body for a long time. You are supposed to get protection over a sustained period of time. Upwards 10 years I've read.
As I understand, it is when one's immune system is trying different things/proteins to kill the vaccine is when it makes the (positive feedback) mistake and begins consuming platelets. Absence of the vaccine doesn't cause the feedback to stop. Removing old platelets from circulation is a normal occurrence in folks with or without ITP.So in the case of my daughter, might the MMR shot's different substances be triggering the ITP for a long time coming?
Children respond differently then adults. They often go into remission out of the blue (without treatment).And also, since the ITP was triggered... and not just "suddenly" happening (as it can, also for kids or adults with no underlaying auto immune issues like my daughter), can the ITP calm down (as it did before) also naturally as 'what is currently triggering the ITP' fades out of her system? Understand what I mean.
Oh, ok. For some reason I was thinking her platelet/thrombocyte count was 83 on Revolade. What dose of Revolade was she on? Was it 25mg, or something higher? I think in some places it is harder to get the higher doses, in which case the doctors switch to Nplate. Has the doctor mentioned trying Nplate?Last note on Revolade, the issue is that it appears that the Revolade first of all didnt increase her trombocyte levels, but it appears... it also dropped her blood count leading to blood anemia. She was at 60 and dropping. She's now off revolade since a week and a half or so and her lvls are increasing (was 83 on monday).
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