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Signs of remission 5 years 1 month ago #64227

nellj21
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Hi All,

My daughter is about to turn 10 and is on 8 months of her ITP diagnosis. As you all know and experienced, it's been a rollercoaster ride. I am wondering what is everyone's experience in acute ITP and it's remission. If you've experienced this, what were your physical symptoms before you were considered in remission? I am looking or literature that describe this, and have not found any. Thank you for your time

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Signs of remission 5 years 1 month ago #64232

Sandi Offline Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18 Posts: 12436 Karma: 11 Thank you received: 2375	Nell - a person is considered to be in remission when they can maintain a normal count without treatment. Symptoms don't have anything to do with it. A person can also have a partial remission, which is when counts stay above treatment range without treatment (50k or so).
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Signs of remission 5 years 1 month ago #64244

mrsb04 Offline ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use. Posts: 2150 Karma: 7 Thank you received: 620	As a nurse I would describe complete remission as when the count is normal without any treatment and partial remission as a count remaining stable whilst taking a 'maintenance' therapy. e.g. If I manage to get completely off steroids stay on 50mg of Eltrombopag daily and maintain my current count.
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Signs of remission 5 years 1 month ago #64246

Hal9000 Offline Give me all your platelets and nobody gets hurt Posts: 1699 Karma: 10 Thank you received: 246	mrsb, is that the way they define partial remissions for kidney issues / kidney transplants, or ? ITP Types and Treatments by HAL
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Signs of remission 5 years 1 month ago #64250

mrsb04 Offline ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use. Posts: 2150 Karma: 7 Thank you received: 620	It's my understanding of the terms and applies to any medical condition
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