Be a part of the ITP community and stay informed.
Login to your account or REGISTER
.

•  Web site Help & Info

Welcome, Guest
Username: Password: Remember me
  • Page:
  • 1

TOPIC:

Signs of remission 5 years 1 month ago #64227

  • nellj21
  • Offline
  • Posts: 2
  • Thank you received: 0
Hi All,

My daughter is about to turn 10 and is on 8 months of her ITP diagnosis. As you all know and experienced, it's been a rollercoaster ride. I am wondering what is everyone's experience in acute ITP and it's remission. If you've experienced this, what were your physical symptoms before you were considered in remission? I am looking or literature that describe this, and have not found any. Thank you for your time

Please Log in or Create an account to join the conversation.

Signs of remission 5 years 1 month ago #64232

  • Sandi
  • Offline
  • Sandi Forum Moderator Diagnosed in 1998, currently in remission. Diagnosed with Lupus in 2006. Last Count - 344k - 6-9-18
  • Posts: 12436
  • Karma: 11
  • Thank you received: 2375
Nell - a person is considered to be in remission when they can maintain a normal count without treatment. Symptoms don't have anything to do with it. A person can also have a partial remission, which is when counts stay above treatment range without treatment (50k or so).

Please Log in or Create an account to join the conversation.

Signs of remission 5 years 1 month ago #64244

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2150
  • Karma: 7
  • Thank you received: 620
As a nurse I would describe complete remission as when the count is normal without any treatment and partial remission as a count remaining stable whilst taking a 'maintenance' therapy.
e.g. If I manage to get completely off steroids stay on 50mg of Eltrombopag daily and maintain my current count.

Please Log in or Create an account to join the conversation.

Signs of remission 5 years 1 month ago #64246

  • Hal9000
  • Offline
  • Give me all your platelets and nobody gets hurt
  • Posts: 1699
  • Karma: 10
  • Thank you received: 246
mrsb, is that the way they define partial remissions for kidney issues / kidney transplants, or ?

Please Log in or Create an account to join the conversation.

Signs of remission 5 years 1 month ago #64250

  • mrsb04
  • Offline
  • ITP since 2014. Retired nurse. My belief is empower patients to be involved as much as possible in their care. Read, read, read & ALWAYS question medics about the evidence base they use.
  • Posts: 2150
  • Karma: 7
  • Thank you received: 620
It's my understanding of the terms and applies to any medical condition

Please Log in or Create an account to join the conversation.

  • Page:
  • 1
Moderators: jaycharness
Charity Navigator
GuideStar Seal
NORD Member Badge
THSNA logo
THSNA Summit 2024
April 3-6th
https://www.thsna.org/2024